Tag Archives: wpc 2010

WPC Roving Reporters: Day One Insights

Each day during our coverage of the 2nd World Parkinson Congress (WPC)…we ask our WPC reporters, “What’s the most interesting thing you heard today?” Here are some answers from Wednesday, September 29: From Kate Kelsall: “The most interesting thing that I heard/saw today was a presentation by David Iverson entitled: Genetics and Me: Patient Perspective. Background of David Iverson: David Iverson has been a producer, writer and correspondent for public broadcasting for 30 years. Most recently, he was the writer, correspondent and co-producer/director of the February 2009 PBS Frontline documentary My Father, My Brother and Me, which explored his family’s… read more Read More

Parkinson’s Quilt Debuts at WPC!

It was a year in the making…but last night marked the debut of the Parkinson’s Quilt! The quilt, a project of PDF, includes 2×2 foot panels from more than 600 people from around the world. After the WPC Opening Ceremonies yesterday, the Royal Burgh of Renfrew Pipe Band led thousands of attendees into the exhibit hall… …and for the first time the world saw the Parkinson’s Quilt. We have all been touched by the personal stories told by the quilt panels. As PDF’s Executive Director noted, “Each quilt panel has a story to tell, whether it was created by a… read more Read More

WPC Posters: CRLI Grads Present

Today kicked off the not only the 2nd World Parkinson Congress (WPC) program – e.g., presentations about the latest Parkinson’s research and care – but also the scientific and lay poster sessions. Most scientific meetings include posters by scientists, which summarize their most recent experiments. The WPC is unique because, alongside the scientific display, it features “Living with PD” posters. These posters display efforts undertaken by people with Parkinson’s disease, care partners and voluntary organizations around the world to further the cause. PDF is proud to report that two of its Clinical Research Learning Institute graduates (who also serve as… read more Read More

WPC Science Day Zero: Orthostatic Hypotension

From James Beck, Ph.D., Director of Research Programs Yesterday, an industry-sponsored session for clinicians and scientists was held prior to the official start of 2nd World Parkinson Congress. Largely a review of current medical management of PD, the session included one tidbit that I found particularly interesting – a comment made by Mark Stacy, M.D. He said that orthostatic hypotension, that is low blood pressure upon standing, is the most common, unrecognized symptom of PD. Up to 40 percent of people with PD experience orthostatic hypotension. Drugs that are currently approved to treat hypotension, like midodrine, work, but may work… read more Read More

WPC Opening Ceremonies III

Rhona Johnson, one of PDF’s WPC reporters and member of our People with Parkinson’s Advisory Council, would like to follow-up on previous posts discussing last night’s WPC Opening Ceremonies. Rhona and others communicated that they were particularly moved at the ceremonies by the words of Bryn Williams, founder of WobblyWilliams.com. Here’s Rhona’s report: “At the Opening Ceremonies last night, Bryn Williams, Founder of WobbyWilliams.com spoke eloquently of how PD impacts people living with the disease, their families, friends and carers. He issued an urgent challenge to them all the work for a cure, saying, ‘Neurologists cannot do it alone. We… read more Read More