Tag Archives: role of people with Parkinson’s

Going 3D: The BigBrain Is A Gift That Keeps on Giving

This blog is part one in a series of three about the BigBrain. Do you remember the moment of putting on 3D glasses in a movie theater? There was awe and excitement as stories and images that were flat came to life. There was similar excitement yesterday when researchers reported in Science that they have created BigBrain, a high resolution 3D digital image of the brain. To understand the excitement, it’s important to understand that like a 3D movie, this image isn’t simply a flat picture of the brain. It is incredibly in-depth. Have you ever had an MRI? Well… read more Read More

Notes from a Day Spent Listening to Scientists Judging PDF Research Applications

Last Friday, March 16, was the occasion for reviewing applications for PDF’s International Research Grants program and Research Fellowships programs. Before us were some 30 proposals from some of the best young (and not-so-young) scientific investigators in the world. As I sat there in the meeting as an observer, listening to the members of our scientific review committee as they made their comments and pronounced their judgments, I found myself scribbling notes on what seemed to be the principles on which they were basing their decisions. What they were saying, it seemed to me, said a lot about how we… read more Read More

PDF Research Advocates in Action

Last week, Dr. Beck discussed the role of PDF Research Advocates in PDF’s grant review. As he said, “These people, PDF’s Research Advocates, part of the Parkinson’s Advocates in Research program, insure what we will fund is not just the best for science’s sake but for the sake of people too.” Wondering what exactly our PDF Research Advocates do? We want them to tell you in our own words. Last year, PDF was able to steal a few minutes from Research Advocates Becky and Tom, in the midst of grant review. They were kind enough to explain their work in… read more Read More

Grant Review at PDF

Today is a big day for many at PDF — it is our annual grant review. Of course, those most affected by what goes on in the big conference room will not be there. There are two groups who depend on tomorrow’s outcome: the scientists who have given us their best ideas for our scientific advisors to judge and the people who live every day with Parkinson’s and are counting on these great ideas to make a difference in their disease and their lives. I am confident that the team of scientists helping — members of our scientific advisory board… read more Read More

Tribute to a Founding PPACer

Yesterday, PDF printed a news item about our dear friend, colleague and PPAC member Joanna T. Steichen, M.S.W. At PDF, we are mourning the loss of this passionate member of the Parkinson’s community. In doing so, we of course find ourselves reminiscing…about her many accomplishments, the many PDF projects in which she had a hand and her friendship. For those of you who did not know Ms. Steichen, we urge you to take a look at this biography compiled on our website, which is quite inspiring. For those of you lucky enough to call Ms. Steichen a friend, we reserve… read more Read More

Reflections on PDF’s Top Ten List

Over the New Year’s holiday, I found myself reflecting on the Top Ten of 2009 – accomplishments of the Parkinson’s Disease Foundation that we thought worthy of sharing with our supporters and friends. (You can find this list on our website.) I was happy to see that for almost every item in the “Top Ten,” the people who live with Parkinson’s – along with their loved ones, friends and health professionals – are front and center. Whether it’s a research project, a new educational program or an advocacy initiative, it is this perspective that keeps our work going. The roles… read more Read More