Tag Archives: raising awareness

The Power of the Pen Against Parkinson’s

“Parkinson’s disease is a mimic. It is also a snowflake; no two incidents being identical in symptoms,” writes Gil Thelen, a PDF Research Advocate and longtime newspaper editor from Tampa, FL. With these words, printed last week as part of his Op-Ed, Mr. Thelen has proven how powerful a tool the pen can be in the fight against Parkinson’s.

Supporting Dad No Matter What: Q&A with Greg and Ann Marie Hardoby

How do you show someone with Parkinson’s that you care? Family and friends often rally around a loved one with PD, showing their support in a variety of ways. During November, which is National Family Caregivers Month, PDF recognizes, “All the Ways Care Partners Care.” Our campaign highlights four diverse stories, including the Hardoby family of Rahway, NJ. Greg Hardoby lives with PD and works with PDF as a volunteer Research Advocate and Champion. Here, he and his daughter Ann Marie discuss how their family copes with PD.

Running 15k for Mom: Q&A with Lisa Goecke

“I decided that running … would be the perfect way to honor my Mother because although running is something she can no longer do, I could do it in her place.” In this Q&A, Lisa Goecke, who is running the Hot Chocolate 15k on November 9 in Chicago, IL as a PDF Champion, shares her story.

Is TV Ready for Parkinson’s?

This Thursday will be a very special day for the Parkinson’s community: the debut of The Michael J. Fox show, a new TV comedy series starring the eponymous TV newscaster who lives with Parkinson’s disease. Michael has done so much to help this community — through the foundation he created, of course, but also by simply giving a “face” to Parkinson’s around the world. It is no exaggeration to say that he has transformed the way we look at PD and the people who live with it, and the level of urgency we all feel to bring resources to bear… read more Read More

Expression vs. Insensitivity: A Message to Kanye West from a Person with Parkinson’s

From Tom Palizzi Chair, PDF People with Parkinson’s Advisory Council Kanye West is without question a richly talented and multifaceted artist. With utmost respect for freedom of expression and the inherent controversial nature of art in general, there is, however, a fine line between expression and insensitivity. “On Sight,” the opening track on Mr. West’s new album Yeezus, includes the lyrics:

From PPAC: Parkinson’s Isn’t Newsworthy … Until It Personally Touches You

By Peggy Willocks, member, PDF People with Parkinson’s Advisory Council April is Parkinson’s Awareness Month. And it won’t be newsworthy that I came all the way from Tennessee to New York to participate in this past Saturday’s Parkinson’s Unity Walk, where about 10,000 people with Parkinson’s, friends and family “walked” through Central Park as a symbolic gesture to raise funding for research. As a member of the Parkinson’s Disease Foundation’s (PDF) Advisory Council, it isn’t newsworthy that I am also here as a voice of the patient in helping to have better and faster approval of therapies for the debilitating… read more Read More