Tag Archives: ppac

How OT Can Improve Daily Life with PD: A PD ExpertBriefing Review

The following Q&A with Claire Berman, member of PDF’s People with Parkinson’s Advisory Council, discusses PDF’s PD ExpertBriefing: Occupational Therapy and PD: Tips for Healthy Living. What role, if any, can an occupational therapist play in helping someone with Parkinson’s continue to enjoy a reasonable quality of life? A very helpful one, I learned from the PD ExpertBriefing led by Sue Berger, Ph.D. and Linda Tickle-Degnan, Ph.D. on September 9, 2014.

Expression vs. Insensitivity: A Message to Kanye West from a Person with Parkinson’s

From Tom Palizzi Chair, PDF People with Parkinson’s Advisory Council Kanye West is without question a richly talented and multifaceted artist. With utmost respect for freedom of expression and the inherent controversial nature of art in general, there is, however, a fine line between expression and insensitivity. “On Sight,” the opening track on Mr. West’s new album Yeezus, includes the lyrics:

From PPAC: Parkinson’s Isn’t Newsworthy … Until It Personally Touches You

By Peggy Willocks, member, PDF People with Parkinson’s Advisory Council April is Parkinson’s Awareness Month. And it won’t be newsworthy that I came all the way from Tennessee to New York to participate in this past Saturday’s Parkinson’s Unity Walk, where about 10,000 people with Parkinson’s, friends and family “walked” through Central Park as a symbolic gesture to raise funding for research. As a member of the Parkinson’s Disease Foundation’s (PDF) Advisory Council, it isn’t newsworthy that I am also here as a voice of the patient in helping to have better and faster approval of therapies for the debilitating… read more Read More

Wednesday Picture Day: PDF Champions

A special thank you goes out to Linda Morgan for raising awareness of Parkinson’s disease this April! Linda is a member of PDF’s People With Parkinson’s Advisory Council (PPAC) and a dedicated PDF Research Advocate. On Monday, April 23, Linda hosted a screening of the film Just Around the Corner at her local movie theater in Asheville, NC, followed by a question and answer session with a panel of people with Parkinson’s. The documentary by Flat Broke Productions follows the story of Bob Benjamin, a music industry veteran and founder of the Light of Day Foundation, who was diagnosed with Parkinson’s… read more Read More

Wednesday Picture Day: PDF Champions

PDF Champion Making a Difference Dr. Maria L. De Leon of Nacogdoches, TX has been extremely busy fundraising for PDF and building awareness in her community. Maria is a member of PDF’s People With Parkinson’s Advisory Council (PPAC) and is a dedicated PDF Champion! On February 12, Maria’s local Defeat Parkinson’s group teamed up with the San Jacinto Junior Girls Scout Troop #9129 to pay tribute to the men and women in their community who are living with Parkinson’s as well as their caregivers. The troop planted red tulips at Oak Manor Nursing Home in preparation for Parkinson’s Awareness Month… read more Read More

WPC Opening Ceremonies III

Rhona Johnson, one of PDF’s WPC reporters and member of our People with Parkinson’s Advisory Council, would like to follow-up on previous posts discussing last night’s WPC Opening Ceremonies. Rhona and others communicated that they were particularly moved at the ceremonies by the words of Bryn Williams, founder of WobblyWilliams.com. Here’s Rhona’s report: “At the Opening Ceremonies last night, Bryn Williams, Founder of WobbyWilliams.com spoke eloquently of how PD impacts people living with the disease, their families, friends and carers. He issued an urgent challenge to them all the work for a cure, saying, ‘Neurologists cannot do it alone. We… read more Read More