In this Q&A, Diane Cook shares her experience being involved in the PDF Community Choice Research Award. Last year, PDF launched the award by asking the community, “what is the most pressing question for scientists to solve in PD?” From the hundreds of submissions we received, our advisory board selected two – fatigue and gastrointestinal function – for awards. This fall, we’re hosting conferences to outline solutions for both symptoms. Q. You attended the first ever conference funded by the PDF Community Choice Research Award. What are your overall impressions? A. First of all, it was very exciting to be… Read More
The following Q&A with Claire Berman, member of PDF’s People with Parkinson’s Advisory Council, discusses PDF’s PD ExpertBriefing: Occupational Therapy and PD: Tips for Healthy Living. What role, if any, can an occupational therapist play in helping someone with Parkinson’s continue to enjoy a reasonable quality of life? A very helpful one, I learned from the PD ExpertBriefing led by Sue Berger, Ph.D. and Linda Tickle-Degnan, Ph.D. on September 9, 2014.
From Tom Palizzi Chair, PDF People with Parkinson’s Advisory Council Kanye West is without question a richly talented and multifaceted artist. With utmost respect for freedom of expression and the inherent controversial nature of art in general, there is, however, a fine line between expression and insensitivity. “On Sight,” the opening track on Mr. West’s new album Yeezus, includes the lyrics:
By Peggy Willocks, member, PDF People with Parkinson’s Advisory Council April is Parkinson’s Awareness Month. And it won’t be newsworthy that I came all the way from Tennessee to New York to participate in this past Saturday’s Parkinson’s Unity Walk, where about 10,000 people with Parkinson’s, friends and family “walked” through Central Park as a symbolic gesture to raise funding for research. As a member of the Parkinson’s Disease Foundation’s (PDF) Advisory Council, it isn’t newsworthy that I am also here as a voice of the patient in helping to have better and faster approval of therapies for the debilitating… Read More
A special thank you goes out to Linda Morgan for raising awareness of Parkinson’s disease this April! Linda is a member of PDF’s People With Parkinson’s Advisory Council (PPAC) and a dedicated PDF Research Advocate. On Monday, April 23, Linda hosted a screening of the film Just Around the Corner at her local movie theater in Asheville, NC, followed by a question and answer session with a panel of people with Parkinson’s. The documentary by Flat Broke Productions follows the story of Bob Benjamin, a music industry veteran and founder of the Light of Day Foundation, who was diagnosed with Parkinson’s… Read More
PDF Champion Making a Difference Dr. Maria L. De Leon of Nacogdoches, TX has been extremely busy fundraising for PDF and building awareness in her community. Maria is a member of PDF’s People With Parkinson’s Advisory Council (PPAC) and is a dedicated PDF Champion! On February 12, Maria’s local Defeat Parkinson’s group teamed up with the San Jacinto Junior Girls Scout Troop #9129 to pay tribute to the men and women in their community who are living with Parkinson’s as well as their caregivers. The troop planted red tulips at Oak Manor Nursing Home in preparation for Parkinson’s Awareness Month… Read More