Tag Archives: people with parkinson’s advisory council

Patient and Caregiver: Side-by-Side Perspectives from Marc and Elaine

What is the relationship between a person with Parkinson’s disease and his or her caregiver? In a special post written during National Family Caregivers Month, we hear perspectives from Marc Sherman, J.D., a person with PD and Elaine Casavant, R.N., a care partner. Both are members of PDF’s People with Parkinson’s Advisory Council.

Making GI a Priority for Parkinson’s Research

In this Q&A, Diane Cook shares her experience being involved in the PDF Community Choice Research Award. Last year, PDF launched the award by asking the community, “what is the most pressing question for scientists to solve in PD?” From the hundreds of submissions we received, our advisory board selected two – fatigue and gastrointestinal function – for awards. This fall, we’re hosting conferences to outline solutions for both symptoms. Q. You attended the first ever conference funded by the PDF Community Choice Research Award. What are your overall impressions? A. First of all, it was very exciting to be… read more Read More

How OT Can Improve Daily Life with PD: A PD ExpertBriefing Review

The following Q&A with Claire Berman, member of PDF’s People with Parkinson’s Advisory Council, discusses PDF’s PD ExpertBriefing: Occupational Therapy and PD: Tips for Healthy Living. What role, if any, can an occupational therapist play in helping someone with Parkinson’s continue to enjoy a reasonable quality of life? A very helpful one, I learned from the PD ExpertBriefing led by Sue Berger, Ph.D. and Linda Tickle-Degnan, Ph.D. on September 9, 2014.

From Peggy: Why I’m at WPC 2013

Some might say, “No way!” but I am attending this week’s 3rd World Parkinson Congress in Montreal, Canada. Many will ask, “Why?” And I say because giving a donation for research is not enough, because being an advocate is not enough, because sharing my story is not enough, because participating in a clinical trial is not enough, because even attending the World PD Congress is not enough, but it shows you that I am serious about finding a cure NOW!