Tag Archives: parkinson’s research

How Much Does Parkinson’s Disease Cost? New IHS Report Indicates Burden on US Families

This week, a report conducted by IHS-Global was published in the journal Movement Disorders, providing the most comprehensive, economic analysis to date of the direct and indirect costs of Parkinson’s disease to individuals and society in the United States.  (In full disclosure, it was underwritten by the Pharmaceutical Research and Manufacturers of America). While certain premises within the report – most notably, the estimate of the overall prevalence of Parkinson’s in the United States, which is probably on the low side  – may be uncertain, most of the numbers are well thought through and carefully applied to the known data…. read more Read More

A Positive Spin: Creativity and PD

We all appreciate the headlines that help us understand PD symptoms and side effects. But we also find it refreshing to see last week’s selection of stories covering ways to take charge of PD with creativity. Victoria Tane featured in the 2013 Creativity & Parkinson’s Calendar The Science Behind the Spin Last Thursday, we saw a review published on, “The Awakening of Artistic Creativity and Parkinson’s” by Rivka Inzelberg, M.D., in Behavior Neuroscience.  Dr. Inzelberg looked at more than 10 studies investigating, “the ability to produce innovative aesthetic works” in people living with Parkinson’s.  She found that: People with PD who… read more Read More

What Makes Us Distinctive? The PDF Way: A Letter from the Executive Director, Winter 2013

What makes PDF distinctive?  As you may remember from September’s post, I am now answering such questions in my introductory letter for the Parkinson’s Disease Foundation’s quarterly newsletters, and posting them on the PDF blog, so we can begin a conversation with you. In PDF’s recently published Winter 2013 issue, I discussed what makes us distinctive, what we call The PDF Way. How does it play out in our programs? The PDF Way In our research portfolio, The PDF Way means supporting the creative ideas brought to us by scientific teams and individuals — peer-reviewed and time-tested. We provide long-term support to… read more Read More

The Good, the Bad and the Ugly: Science Reporting in Parkinson’s

Will eating berries lessen your risk of Parkinson’s? What about coffee? What’s the real story on coconut oil? Is deep brain stimulation a miracle surgery? All of us, whether or not we live Parkinson’s, are faced each day with a barrage of headlines about what might help or harm our health. After such headlines appear, PDF often receives an influx of inquiries asking: Does this new drug/therapy/compound help Parkinson’s? Is this new drug a cure? When will this new breakthrough be available? The Good News Scientists all over the world are conducting research into Parkinson’s. They are publishing their work… read more Read More

Understanding the Progression of Parkinson’s

Can you predict the progression of Parkinson’s? … or change its course? Last Tuesday, during PDF’s PD ExpertBriefing, “Understanding the Progression of Parkinson’s,” presenter Dr. Ron Pfeiffer had a few suggestions: Dr. Pfeiffer provided facts about PD progression – about the percentage of people with PD who develop certain symptoms or leave their jobs after a certain number of years – but also emphasized that these are general facts.  Each person’s journey with Parkinson’s is very different. He noted that there are no treatments proven to reverse PD, but he also emphasized there are actions people can take, such as… read more Read More

Protecting the People Who Test New Parkinson’s Treatments

We all want better treatments for Parkinson’s.  Tuesday’s announcement that one of PDF’s Research Centers – Rush University Medical Center, in Chicago, IL – received full accreditation from The Association for the Accreditation of Human Research Protection Programs, Inc. (AAHRPP) is another step in the right direction. Fewer than 200 institutions around the country are fully or partially accredited by AAHRPP. Before any new treatment, for PD or another condition, is approved it must first be tested in people – in clinical research studies – to ensure it is safe and effective.  The AAHRPP accreditation means that Rush is following… read more Read More