Tag Archives: parkinson’s research

From Dr. Atwell: Building the Next Generation of PD Clinicians and Scientists

Thank you, on behalf of the Board of Directors, for those of you who have supported the Parkinson’s Disease Foundation this year, including those who have donated to this month’s special $500,000 challenge. Because of you, we have raised over $150,000 so far toward our goal, and every single gift will be doubled. As a scientist, your support gives me hope. I spent many years working with the nation’s largest biomedical research agency, the National Institutes of Health (NIH), to award billions of dollars in grants for neuroscience research, including Parkinson’s. And I knew of PDF’s reputation for supporting the next generation of… read more Read More

An Update on the BRAIN Initiative

A year or so after President Obama personally announced his signature initiative to create a public-private partnership to improve our understanding of the infrastructure of the human brain, the White House convened 250 of us to hear a report card and plans on progress to date. I was invited — wearing my two hats as President of the Parkinson’s Disease Foundation and Chair of the American Brain Coalition — to attend the September 30 meeting, along with other leaders of the multi-million dollar effort, including those from the National Institutes of Health (NIH) neurology and mental health institutes, neuroscientists, industry reps, professional… read more Read More

Genetic Testing: FDA & The Importance of Getting it Right

Several months ago, I broached the issue of direct-to-consumer genetic testing in PD. There, my message was that you should look before you leap and take the time to understand what genetic testing would tell you (and whether you really wanted to know it). Implicit in that discussion is the need to have accurate results. This is different than the desire to have the weather forecaster tell you if it is going to rain or not tomorrow. For most people, inaccurate weather predictions are a nuisance more than anything.

BigBrain – What Does It Mean?

From James Beck, Ph.D., Director of Research Programs This blog is part two in a series of three about the BigBrain. Several weeks ago saw the announcement of a description of a new and highly detailed atlas of the brain, called BigBrain.  PDF wrote about how one person, making the decision to donate their brain, has made a significant contribution to science.  Indeed, that is true.  But what does this really mean for the future of neuroscience … and Parkinson’s research?

Righting the Clinical Research "Enterprise"

When opening the Sunday Review section of the New York Times this past weekend,  I did a double-take as a topic of much discussion here at PDF was featured front and center – trumping commentary on the state of the economy, international relations and the latest political debate. “Do Clinical Trials Work?,” by Clifton Leaf serves as a primer on some of the key issues that prevail within the clinical research enterprise – the tension between scientific inquiry and patient priorities; the odds that study sponsors take when betting on the success of a potential therapy; and the disconnect between those who… read more Read More