Is constipation the most disabling symptom of Parkinson’s disease (PD)? It may be surprising, but many people with PD report to the Parkinson’s Disease Foundation (PDF) that the most bothersome aspects of their disease aren’t tremor or stiffness, but instead are nonmotor symptoms such as constipation and fatigue. Luckily, researchers are starting to better understand these symptoms and nurses such as Jean S. MacFadyen, Ph.D., R.N., a 2011 Scholar of The Edmond J. Safra Visiting Nurse Faculty Program (EJS-VNF) at PDF are helping people with Parkinson’s to learn about and manage them. We sat down with Dr. MacFadyen to learn about her experience… Read More
How would you help your patients with PD if levodopa were unavailable? It is a difficult question. But it is one that Elizabeth K. Keech, Ph.D., R.N., an adjunct clinical assistant professor from Villanova University College of Nursing and a scholar with The Edmond J. Safra Visiting Nurse Faculty Program at PDF, sought to answer along with one of her students, Elizabeth Yates, B.S.N., R.N. The EJS-VNF Program at PDF trains nursing faculty in Parkinson’s disease, so that they can prepare the next generation of nurses — their students — to care for the growing number of people living with… Read More
The following Q&A with Claire Berman, member of PDF’s People with Parkinson’s Advisory Council, discusses PDF’s PD ExpertBriefing: Occupational Therapy and PD: Tips for Healthy Living. What role, if any, can an occupational therapist play in helping someone with Parkinson’s continue to enjoy a reasonable quality of life? A very helpful one, I learned from the PD ExpertBriefing led by Sue Berger, Ph.D. and Linda Tickle-Degnan, Ph.D. on September 9, 2014.
What is the one topic you wish PDF’s educational programs would cover about Parkinson’s disease? … medications? … nutrition? …. exercise? We hope you tell us by taking our very short (promise – it’s just four questions) survey. You may already know that PDF regularly hosts online seminars, or PD ExpertBriefings, along with a host of other educational programs. Available live (both online and by phone) and recorded (both online and as DVDs), they are some of our most popular programs. But we want to make sure we’re covering the topics that are relevant to your life with Parkinson’s. So… Read More