Tag Archives: Parkinson’s care

The Myth of Palliative Care

November is recognized as National Hospice and Palliative Care Month. Is there a difference between the two? Yes — palliative care is specialized medical care that focuses on providing, “relief from the symptoms of stress of a serious illness,” as PDF Research Advocate Kirk Hall explained in an earlier blog.  Although often mistaken for end-of-life care, the definition of palliative care is actually very broad. On the other hand, hospice care is designed to improve quality of life through pain relief and symptom management for individuals facing end-of-life. It is important to understand the difference between the two types of care, and how both can benefit… read more Read More

Thanking PTs: National Physical Therapy Month

Has a physical therapist helped your life with Parkinson’s disease (PD)?  This month, we join with the American Physical Therapy Association (APTA) in recognizing National Physical Therapy Month, which thanks physical therapists and physical therapy assistants for their efforts to help people to improve and restore movement. For many people with PD, physical therapy is an important part of their treatment plan, and their physical therapist is an important member of the health care team.

From Baltimore to India: Visiting Nurse Notes with Alpa Uchil, M.P.H., R.N.

How are we preparing the next generation of nurses to care for the growing population of people with Parkinson’s? The alumni of The Edmond J. Safra Visiting Nurse Faculty Program (EJS-VNF) at PDF are doing their part. Alumni of the program, such as Alpa Uchil, M.P.H., R.N., a nurse at The Johns Hopkins University (JHU) School of Medicine, undergo the “train the trainer” curriculum, so that they can, in turn, educate their nursing students. We sat down with Ms. Uchil, who completed the program in 2014, to understand her work in Parkinson’s and how the EJS-VNF program has made an impact. She’s… read more Read More

All the Ways Care Partners Care: Q&A with Elaine & Len Casavant

How do you show someone with Parkinson’s that you care? Family and friends often rally around a loved one, showing their support in a variety of ways. During November, which is recognized as National Family Caregivers Month, PDF recognizes, “All the Ways Care Partners Care.” Our campaign highlights four diverse stories, beginning with Elaine Casavant, R.N., a member of the PDF People with Parkinson’s Advisory Council, whose husband Len lives with Parkinson’s.

What’s On Your Wishlist? Seeking Your Feedback for our Educational Programs

What is the one topic you wish PDF’s educational programs would cover about Parkinson’s disease? … medications? … nutrition? …. exercise? We hope you tell us by taking our very short (promise – it’s just four questions) survey. You may already know that PDF regularly hosts online seminars, or PD ExpertBriefings, along with a host of other educational programs.  Available live (both online and by phone) and recorded (both online and as DVDs), they are some of our most popular programs. But we want to make sure we’re covering the topics that are relevant to your life with Parkinson’s.  So… read more Read More

Notes from AAN 2011, Part II: Which Doctors Treat Parkinson’s?

From James Beck, Ph.D., Director of Research Programs As mentioned last week, this year the American Academy of Neurology held its annual convention in Honolulu, Hawaii, attracting nearly 7,000 neurologists and neuroscientists. I wanted to provide you with an update of interesting and new developments that were presented at the meeting last week, in particular, three studies which discussed whom people with living with Parkinson’s disease see for their care. #1-The first was a health economics presented by Marcy Tarrants, Ph.D., of Teva Neuroscience and her colleagues (presentation P01.087). This group examined the records of newly-filled prescriptions for people diagnosed… read more Read More