Most of us know that April is Parkinson’s Awareness Month. But did you know that April is also National Occupational Therapy Month? At PDF, we are excited to see these two awareness months coincide. We have been working alongside occupational therapists (OTs) in recent years to raise awareness of the ways in which OT can improve the lives of people with Parkinson’s. For example, PDF added a webinar and fact sheet to our library of educational materials, both of which discuss benefits of occupational therapy for people with Parkinson’s and practical tips for working with an OT. We also launched… Read More
How can you help PDF end Parkinson’s disease? Join our team during April, Parkinson’s Awareness Month! Here are five easy ways you can join the team, inspired by the efforts of PDF Champions — our grassroots fundraisers who are raising awareness and funds for Parkinson’s in communities across the US.
Lea Dempsey, 13, of Princeton, NJ, has a knack for drawing, which she credits to her late grandfather, an avid painter who lived with Parkinson’s disease for more than a decade. When the seventh grader stumbled upon PDF’s Kids Only T-Shirt Design Contest a few months back, she knew it was the perfect way to honor his memory. Earlier this month, the public voted her design, “Join the Team Ending Parkinson’s,” to be printed on PDF’s 2016 Awareness T-shirts that will be worn by hundreds of people across the country. What’s the story behind Lea’s design? PDF recently interviewed Lea and… Read More
“My collections are inspired by beauty and science, neuroscience to be exact,” says Emily Alice Ball. A jewelry designer from the UK, Emily Alice’s collections are uniquely named and categorized … according to science. For instance, there’s the oxytocin and the serotonin collection, and then there’s adrenalin. And most importantly during April … there’s dopamine. Dopamine is the neurotransmitter in the brain that helps with movement and coordination. It is also the one that is lost in Parkinson’s disease. Three years ago, Emily Alice, whose friend and customer lives with Parkinson’s disease, came to PDF with a creative idea for Parkinson’s Awareness… Read More
“Parkinson’s disease is a mimic. It is also a snowflake; no two incidents being identical in symptoms,” writes Gil Thelen, a PDF Research Advocate and longtime newspaper editor from Tampa, FL. With these words, printed last week as part of his Op-Ed, Mr. Thelen has proven how powerful a tool the pen can be in the fight against Parkinson’s.
Which question about Parkinson’s is your priority for scientists to answer? According to Cindy Bittker, M.S.W., a PDF Research Advocate from Hull, MA, the answer is: dystonia. As part of its Second Annual Community Choice Research Awards (open during April), PDF is profiling members of the PD community who have taken our survey to find out the priorities they suggest for scientists. The survey — open to people with PD and care partners until Thursday, April 30 — asks what is most important for researchers to study regarding specific aspects of the disease, including its symptoms, day-to-day management and treatment. Later in… Read More