Tag Archives: Parkinson’s Action Network

How Much Does Parkinson’s Disease Cost? New IHS Report Indicates Burden on US Families

This week, a report conducted by IHS-Global was published in the journal Movement Disorders, providing the most comprehensive, economic analysis to date of the direct and indirect costs of Parkinson’s disease to individuals and society in the United States.  (In full disclosure, it was underwritten by the Pharmaceutical Research and Manufacturers of America). While certain premises within the report – most notably, the estimate of the overall prevalence of Parkinson’s in the United States, which is probably on the low side  – may be uncertain, most of the numbers are well thought through and carefully applied to the known data…. read more Read More

A Fond Farewell to an Extraordinary Friend, Paula Wittekind

Paula Wittekind In the loss of Paula Wittekind, who passed away on November 8, the Parkinson’s community bids farewell to a lovely friend, a fine mind, and a courageous and indefatigable presence. To the end, she fought quietly but effectively against her own infirmities and against the indifference of institutions that she felt could always do more to wage serious war against Parkinson’s. But in all of these ventures – whether it was the legendary Parkinson’s Pipeline Group, which she co-founded, the Parkinson’s Action Network, or my own organization, the Parkinson’s Disease Foundation – Paula served as an effective research… read more Read More

The Recent Court Decision Halting Federal Funding for Research Involving Human Embryonic Stem Cells

You will all have read about last Monday’s surprise decision by a federal judge to halt federal funding for human embryonic stem cell (hESC) research. The ruling, which was in response to a lawsuit by scientists who were engaged in non-hESC research, was based upon the judge’s interpretation of a Congressional ban on using federal funds for the destruction of embryos that is sharply at odds with more than a decade of legal interpretations under three administrations, Republican as well as Democratic. Although the decision on hESC research does not extend to other kinds of stem cell research – including… read more Read More