Tag Archives: crli

WPC: Final Thoughts

As the 2nd World Parkinson Congress comes to a close, PDF is humbled and honored to include the following closing thoughts from guest blogger and CRLI/WPC reporter, Diane G. Cook.World Parkinson Congress: A “Tremor Safe” Zone “Here at the World Parkinson Congress, we’re in a Tremor Safe Zone.” Those words were spoken by Davis Phinney to describe how it feels to be among thousands of others where it’s okay to have PD. No one notices the drag of foot, the slowness of step, the shakiness of hand, the softness of voice. Everyone does it! No self consciousness here! But there’s… read more Read More

WPC Posters: More CRLI Grads Present

As we chatted about in a previous post, the 2nd World Parkinson Congress includes two poster sessions, one led by researchers about the science and care of Parkinson’s and another led by Parkinson’s community members who have made efforts in their community to move the cause forward. We profiled a few of PDF’s CRLI graduates yesterday and wanted to update you on some other individuals who have presented their work. Check out Israel’s poster on the left and a list of others who presented during the week. Israel RobledoParkinson’s Outreach. Hope For Tomorrow. Help For Today (Robledo, I)Israel works to… read more Read More

WPC Roving Reporters: Day Two Science

The 2nd World Parkinson Congress continues its three days of sessions discussing the latest news in Parkinson’s science and care. PDF’s reporters have been listening in to a variety of these sessions. They are reporting back what they have seen and heard….and sharing the most important messages they are hearing as people living with Parkinson’s. Please note that this post was updated on October 5. Kate Kelsall Attended: Music as Pleasure and How It Can Empower YouPresenter: Concetta (Connie) Tomaino, D.A., MT-BC, LCAT, Executive Director of the Institute for Music and Neurologic Function in the Bronx, New York “Some of… read more Read More

WPC Roving Reporters: Day One Insights

Each day during our coverage of the 2nd World Parkinson Congress (WPC)…we ask our WPC reporters, “What’s the most interesting thing you heard today?” Here are some answers from Wednesday, September 29: From Kate Kelsall: “The most interesting thing that I heard/saw today was a presentation by David Iverson entitled: Genetics and Me: Patient Perspective. Background of David Iverson: David Iverson has been a producer, writer and correspondent for public broadcasting for 30 years. Most recently, he was the writer, correspondent and co-producer/director of the February 2009 PBS Frontline documentary My Father, My Brother and Me, which explored his family’s… read more Read More

WPC Posters: CRLI Grads Present

Today kicked off the not only the 2nd World Parkinson Congress (WPC) program – e.g., presentations about the latest Parkinson’s research and care – but also the scientific and lay poster sessions. Most scientific meetings include posters by scientists, which summarize their most recent experiments. The WPC is unique because, alongside the scientific display, it features “Living with PD” posters. These posters display efforts undertaken by people with Parkinson’s disease, care partners and voluntary organizations around the world to further the cause. PDF is proud to report that two of its Clinical Research Learning Institute graduates (who also serve as… read more Read More