By Alan and Cherry Zimmerman Recently, we were asked through the PDF Community Choice Research awards to choose our top priority for Parkinson’s research. We chose caregiver needs. (See our photo at left, or a larger version here.) As you may know, PDF spends $5 million a year on research to solve, treat and end Parkinson’s disease. Through the Community Choice Research Awards, PDF asks the community to help identify other unmet needs not being addressed by research.
Are you looking for practical tips for managing Parkinson’s disease? Join the Parkinson’s Disease Foundation (PDF) newest series of PD ExpertBriefings beginning on Tuesday, September 13. The newest series includes six free online seminars designed to cover gaps in PD education on topics such as travel, pain and sleep. And we have you to thank for the topics! In PDF’s annual survey about Parkinson’s education, 1,000 of you responded, letting us know which topics were most important. Your feedback helped form this series.
Do you think of yourself or your loved one as a “caregiver” in life with Parkinson’s disease? There are some people who identify with this term, but many others who do not, which is why when Rhona Johnson, a former member of PDF’s People with Parkinson’s Advisory Council (PPAC) coined the term “care partnership,” PDF thought it fit perfectly.
Are you a care partner to someone living with Parkinson’s? You are not alone. In fact, PD care partners may have some experiences in common with 43 million other Americans who also help to care for loved ones. This information was shared last week, when the AARP joined with the National Alliance for Caregiving to report on the state of caregiving in the US. Together the groups reported on results from a nationwide survey which included responses from 1,250 caregivers who specifically care for adults living with a variety of illnesses such as cancer and Alzheimer’s disease. What did we learn… Read More
How do you show someone with Parkinson’s that you care? Family and friends often rally around a loved one with PD, showing their support in a variety of ways. During November, which is National Family Caregivers Month, PDF recognizes, “All the Ways Care Partners Care.” Our campaign highlights four diverse stories, including the Hardoby family of Rahway, NJ. Greg Hardoby lives with PD and works with PDF as a volunteer Research Advocate and Champion. Here, he and his daughter Ann Marie discuss how their family copes with PD.
What is the relationship between a person with Parkinson’s disease and his or her caregiver? In a special post written during National Family Caregivers Month, we hear perspectives from Marc Sherman, J.D., a person with PD and Elaine Casavant, R.N., a care partner. Both are members of PDF’s People with Parkinson’s Advisory Council.