Caregiver-Doctor-Patient: Q&A with Dr. Maria De Leon

caregiversmonth14_deleon_mariaHow do you show someone with Parkinson’s that you care? Family and friends often rally around a loved one, showing their support in a variety of ways. During November, which is recognized as National Family Caregivers Month, PDF recognizes, “All the Ways Care Partners Care.” Our campaign highlights four diverse stories, including the story of Maria De Leon, M.D., of Nacogdoches, TX, a member of PDF’s People with Parkinson’s Advisory Council and a PDF Research Advocate.

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Caring as a Team: Q&A with Paul and Jane Gaydos

caregiversmonth14_gaydos_pauljane_smallHow do you show someone with Parkinson’s that you care? Family and friends often rally around a loved one, showing their support in a variety of ways. During November, which is recognized as National Family Caregivers Month, PDF recognizes, “All the Ways Care Partners Care.” Our campaign highlights four diverse stories, including the story of Paul and Jane Gaydos, of Cleveland, OH, PDF Research Advocates (Jane lives with PD) who have been married for 47 years.

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All the Ways Care Partners Care: Q&A with Elaine & Len Casavant

caregiversmonth14_final_casavant_elainelen150x100How do you show someone with Parkinson’s that you care? Family and friends often rally around a loved one, showing their support in a variety of ways. During November, which is recognized as National Family Caregivers Month, PDF recognizes, “All the Ways Care Partners Care.” Our campaign highlights four diverse stories, beginning with Elaine Casavant, R.N., a member of the PDF People with Parkinson’s Advisory Council, whose husband Len lives with Parkinson’s.

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Running 15k for Mom: Q&A with Lisa Goecke

champions_goecke_lisa_sandrasue“I decided that running … would be the perfect way to honor my Mother because although running is something she can no longer do, I could do it in her place.”

In this Q&A, Lisa Goecke, who is running the Hot Chocolate 15k on November 9 in Chicago, IL as a PDF Champion, shares her story.

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Making GI a Priority for Parkinson’s Research

In this Q&A, Diane Cook shares her experience being involved in the PDF Community Choice Research Award. Last year, PDF launched the award by asking the community, “what is the most pressing question for scientists to solve in PD?” From the hundreds of submissions we received, our advisory board selected two – fatigue and gastrointestinal function – for awards. This fall, we’re hosting conferences to outline solutions for both symptoms.

Diane Cook

Q. You attended the first ever conference funded by the PDF Community Choice Research Award. What are your overall impressions?
A. First of all, it was very exciting to be part of this first grant where the research question was identified by patients, those of whom know firsthand where better treatments are needed!

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Why I’m Changing Research for My Husband: A Q&A with Anne Newbould

In this Q&A, Anne Newbould, a care partner to her husband with PD, shares her experience being involved in the PDF Community Choice Research Award. Last year, when PDF launched the award by asking, “what is the most pressing question for scientists to solve in PD?” she answered: fatigue. Her research priority was selected from amongst hundreds of submissions. This week, to address the symptom she helped to identify, PDF is bringing together experts and advocates in Chicago, IL.

newbould-anne1Q. What motivated you to submit your research idea for PDF’s Community Choice Research Award?
A. My husband of over 40 years, James, has been living with Parkinson’s since 2009. As the care partner for the love of my life, I’m always going to do whatever it takes for him. I got so excited when I found PDF’s survey last year that asked the patient community, “what is the most pressing question for scientists to solve in Parkinson’s?” For the first time, I felt I could shed light on fatigue, one of the ‘invisible’ symptoms of Parkinson’s, which impacts so many of our loved ones. You have to start somewhere when you want something to change and what better place to start than by working with PDF?

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