I’m a nurse specializing in Parkinson’s disease. Because of investment from the Parkinson’s Disease Foundation, I’m helping to expand the team of nurses who can treat and end PD. And we need your help!
A few years ago, as a nursing educator, I was troubled to see that we were leaving the next generation of nurses unprepared to care for people with Parkinson’s disease — in fact, the textbook included only one sentence on PD! But with PDF’s $600,000 investment in health care leaders — including training to prepare the next generation of nurses — this is changing.
By PDF Champion Rachel Isenberg
Today is #GivingTuesday, a national day of giving that challenges the public to give back to a charity of choice. This #GivingTuesday, I’m asking you to help me raise awareness of PDF’s work to end Parkinson’s.
I ask for your help because PDF’s work is close to my heart: my mother lives with Parkinson’s and my late grandfather also lived with the disease. For the past six years, I have completed a “summer challenge” to raise funds and awareness for PDF. I have scaled mountains, biked across states, and kayaked and ran in order to raise over $27,000 for PDF (so far!).
Kirk Hall (back row, middle) & Gil Thelen (second from right) at the PDF Conference on Palliative Care.
As part of our scientific funding, the Parkinson’s Disease Foundation (PDF) is investing more than $90,000 in Conference Awards in 2015.
Through this program, we fund gatherings of experts to address unsolved questions in Parkinson’s, such as, “how can we improve palliative care in Parkinson’s at every stage of the disease?”
In October, we hosted a conference to answer this question. Led by Benzi Kluger, M.D. of the University of Colorado, it included a global group of scientists, doctors, health professionals and PDF Research Advocates Kirk Hall of Denver, CO, and Gil Thelen of Tampa, FL. Below, Kirk and Gil report back on what happened and what can be done to improve palliative care for people with PD.
I’m a scientist and a doctor. Because of funding from the Parkinson’s Disease Foundation, I’m spending my career as a member of the team ending PD. But we need your help.
As a young neurologist, PDF’s investment in my two-year fellowship — and its annual investment in my fellow research leaders in the amount of $4.6 million — enabled me and others to join the team fighting PD. But we need your donation to help us meet our goal of ending the disease. When you donate by Thursday, December 31st, your donation will be doubled by the PDF Board of Directors and friends for up to $500,000!
As November draws to an end and December peeks around the corner, I feel compelled to lift my head above the daily grind and take stock of life.
Because despite Parkinson’s disease, I live a rich and full life. Some blessings come to mind:
You may have noticed that PDF has opened up applications for individuals interested in joining our People with Parkinson’s Advisory Council. Our members, all people living with PD and care partners, are driving PDF’s goal of ending Parkinson’s disease.
Each member has made unique contributions to PDF’s work to mobilize leaders in science, health care and the patient community to work together toward a cure.
How do they do it? Here are four ways: