The first thing I noticed as I entered the conference center was the presence of people with Parkinson’s (PwPs) everywhere. Several PwPs were accompanied by their caregivers, some traveled with friends and others looking for friends who were also attending WPC. It seemed like PwP from all over the world congregated in Montreal.
In Glasgow, I was an attendee two years into my Parkinson’s diagnosis, eagerly absorbing as much as I could by attending every session. By Montreal, I was several years into serving as a PDF Research Advocate, as part of the organization’s Parkinson’s Advocates in Research (PAIR) program.
Most scientific meetings include posters by scientists, which summarize their most recent experiments. The 3rd World Parkinson Congress is unique in that it features posters by advocates with Parkinson’s alongside those by scientists.
PDF is proud to report that our team had 13 posters at the WPC! This included posters from seven PDF Research Advocates (one doubled up), three PDF staff members, and two PDF-funded researchers. Yesterday we were able to catch up with a few of them. Here’s a summary:
Many will ask, “Why?” And I say because giving a donation for research is not enough, because being an advocate is not enough, because sharing my story is not enough, because participating in a clinical trial is not enough, because even attending the World PD Congress is not enough, but it shows you that I am serious about finding a cure NOW!
The 3rd World Parkinson Congress includes three days of sessions discussing the latest in Parkinson’s science and care. During day two, PDF reporter and Research Advocate Ronnie Wanetick of Walnut Creek, CA, reported back on two sessions – one covering late stage Parkinson’s and another discussing cognitive symptoms of Parkinson’s.