Improving Hospital Visits with PD: Visiting Nurse Notes with Dr. Gerry Altmiller

altmiller_geralynHow can we improve hospital care for people with Parkinson’s disease (PD)? When people with Parkinson’s visit the hospital (usually for a non PD-related health condition), they can experience longer stays and more often need rehabilitation than those without the disease.

One challenge facing the health professionals responsible for care is the need for updated information on Parkinson’s disease. Luckily, Gerry Altmiller, Ed.D., A.P.R.N., AC.N.S.-B.C., an alumni of The Edmond J. Safra Visiting Nurse Faculty Program (EJS-VNF) at the Parkinson’s Disease Foundation (PDF), is helping to make that happen.
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Thanking PTs: National Physical Therapy Month

Has a physical therapist helped your life with Parkinson’s disease (PD)?  This month, we join with the American Physical Therapy Association (APTA) in recognizing National Physical Therapy Month, which thanks physical therapists and physical therapy assistants for their efforts to help people to improve and restore movement.

For many people with PD, physical therapy is an important part of their treatment plan, and their physical therapist is an important member of the health care team.

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DBS in Primetime: NatGeo to Air Brain Surgery Live This Sunday

BrainHave you or has a loved one undergone deep brain stimulation surgery for Parkinson’s disease (PD)? Would you undergo the surgery on live television?

That’s what is happening on Sunday, October 25 as deep brain stimulation surgery for PD makes its primetime debut on the National Geographic Channel at 9:00 PM ET. Greg Grindley, a 49-year-old father of four living with young onset PD, will undergo the procedure at University Hospitals Case Medical Center in Cleveland, OH, as cameras roll and viewers at home get an up-close look at the brain in real-time.

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Triathlon for Dad: A Q&A with Mark Macenas

Mark MacenasWhat sparks a PDF Champion’s desire to complete a triathlon for Parkinson’s research? For Mark Macenas of Durham, NC, who completed the Wilmington Sprint Triathlon on September 19, it was watching his dad’s fight with Parkinson’s disease.

And for this avid athlete, the 1,500-meter swim, 12-mile bike ride and 5K run weren’t challenging enough. Mark, a firefighter and EMT of more than 14 years, also wore his full firefighting gear (decked out in PDF stickers) for a portion of the race. Mark has since raised more than $2,200 for PDF.

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Et Tu Nilotinib?: Understanding Headlines about an Anti-Cancer Drug for PD

jbeck.jpgThe Society for Neuroscience annual meeting, which took place last week in Chicago, IL, is a place where the latest preliminary data in neuroscience is presented. True to form, there was an interesting abstract presented by Fernando Pagan, M.D. and colleagues from Georgetown University Hospital which suggested a potential treatment for those with Parkinson’s disease (PD). At the heart of the presentation, Dr. Pagan and colleagues reported that in a small trial, an anti-cancer drug called nilotinib was able to reverse both the movement symptoms and cognitive decline of people with PD involved in the study.

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PDF Reconoce el Mes Nacional de la Hispanidad (PDF Recognizes National Hispanic Heritage Month)

hispanicheritage3La herencia y cultura Hispana se celebra durante el Mes de la Hispanidad (15 de Septiembre al 15 de Octubre). Aquí en PDF, en nuestra misión de servir al millón de estadounidenses que viven con la Enfermedad de Parkinson, reconocemos la evolución de la comunidad de habla hispana en los EE.UU., ofreciendo materiales y recursos educativos en Español.

Estas publicaciones son una recopilación de preguntas frecuentes, y una serie de hojas informativas sobre temas relacionados con el Parkinson.

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