During National Family Caregivers Month, we honor care partners to people with Parkinson’s. We thank them for their efforts to care for their loved ones and help PDF #EndParkinsons.
This includes Cherry Zimmerman, care partner to her husband Alan who is a member of the PDF People with Parkinson’s Advisory Council. They reside in Knoxville, TN. We sat down with them to understand more about their PD partnership and the needs of Parkinson’s care partners.
Dear friends of PDF:
Because of your support, this year PDF invested $5 million in research and $1.1 million for training of health leaders and patient leaders.
Are you committed to finding a cure for Parkinson’s and helping those who live with the disease?
We need you. Apply to the People with Parkinson’s Advisory Council (PPAC) of the Parkinson’s Foundation by Monday, December 19.
By Alan and Cherry Zimmerman
Recently, we were asked through the PDF Community Choice Research awards to choose our top priority for Parkinson’s research.
We chose caregiver needs. (See our photo at left, or a larger version here.)
As you may know, PDF spends $5 million a year on research to solve, treat and end Parkinson’s disease. Through the Community Choice Research Awards, PDF asks the community to help identify other unmet needs not being addressed by research.
This Veterans Day, the Parkinson’s Disease Foundation (PDF) honors veterans who have served our country, including those touched by Parkinson’s disease.
In particular, we recognize the veterans on the PDF team who continue to serve the community by helping us to end Parkinson’s disease. Here are a few of their stories.
One day, we hope to offer treatments tailored to the individual needs of each person with Parkinson’s. But how can we do that if we don’t understand how genetics impact Parkinson’s? After all, our genes are part of what make us unique, including how they relate to our health.
This issue came up last week in Nature, when a group of researchers released findings from research in which they analyzed 2,500 genetic studies conducted in 2016 that studied the genes of more than 35 million people. They compared this to a similar analysis from 2009. They found that in 2016, the majority (81 percent) of those 35 million people were of European descent, and the proportion of those of Asian descent increased slightly since the 2009 analysis. Otherwise, most non-European groups are still underrepresented in research.
Why does this matter? Because genetic changes, even if they affect only a small group, help us understand disease overall. By limiting genetics to those of European descent, we could be holding back research and cures for everyone.