“Can’t” isn’t part of Alan Zimmerman’s vocabulary. That’s why he is on a mission to end Parkinson’s disease, along with an enthusiastic team. This month, he and fellow members of the PDF People with Parkinson’s Advisory Council (PPAC) are launching a special team fundraiser to support PDF research programs.
Their goal? Raise $25,000 to support PDF’s Community Choice Research Awards, which support research into unmet needs in PD that are identified by the community. Hear from Alan, known by friends as “Z man,” about why he’s excited to work with his PPAC team to make a difference.
Photo credit: Joy Esterberg
When was the last time you danced? In recent years, the Parkinson’s Disease Foundation (PDF) has seen growing popularity and availability of dance programs designed specifically for people with Parkinson’s disease. In fact, the trend was discussed a few weeks ago in a National Public Radio segment.
Have you or a patient or a loved one tried dance classes for PD? If not, what should you know and how can you find a class?
Let’s explore the answers. And don’t miss our video, “A Celebration of Movement,” which may leave you inspired to get up and dance.
From left to right: PDF Research Advocate Ronnie Wanetick and Alit Stark-Inbar, Ph.D. at UC Berkeley
Did you know that anxiety and depression are common in Parkinson’s disease (PD)? Both of these fall under the umbrella of mood disorders. But despite being common in PD, they often go undiagnosed (or incorrectly diagnosed) and under-treated.
By combining forces, a scientist-patient advocate team involving Alit Stark-Inbar, Ph.D., at UC Berkeley and Ronnie Wanetick, a PDF Research Advocate, is finding solutions.
The two received a PDF PAIR Leadership Award to study EMOTE, an iPad app that can help to monitor depression and anxiety throughout the day, and even offers games to help ease symptoms. While the app is still being tested (it’s not yet available to the public) the initial results are promising. We sat down with Dr. Stark-Inbar to hear about the research, and how the insights of people with PD helped to make it happen.
Are people newly diagnosed with Parkinson’s finding the right support? Many people, when first diagnosed with Parkinson’s, are given little guidance on facing life with a chronic progressive disease. And that diagnosis is life changing — it entails changes to health, relationships, family life, employment and finances.
Diane Cook, a member of the PDF People with Parkinson’s Advisory Council, is passionate about changing this. She wants to support the newly diagnosed so they can begin their PD journey on the right foot.
Over the past few years, she has developed a program called PD SELF. It provides tools and information to the newly diagnosed, and asks them to learn “self-efficacy” — to tap into their personal power to manage their PD and improve their health and well-being.
From left to right: Amy Sole, Doug Stern and Stephanie Goldman-Pittel at their 2014 Tequila & Tapas. Photo Credit: BC the Mag
What’s the recipe for success when it comes to fundraising for PD? For PDF Board Member Stephanie Goldman-Pittel and friends Amy Sole and Doug Stern, it’s simple: turn happy hour into helping hour.
In 2014, the trio created a local PDF Helping Hours, inviting friends and family for cocktails at Harvest Bistro in Closter, NJ, to raise funds for PDF. Over the years, their thematic events — tequila and tapas in their first year, and a vodka tasting in year two — have raised more than $47,000 for PDF research programs. The group will gather on Thursday, March 3, for this year’s Martinis and Bellinis, their third annual event.
What’s the secret to their success? In this interview, Stephanie shares tips and tells us why the Parkinson’s cause is so important to their group.
Are there steps a person with Parkinson’s can take to live better with the disease? Yes, according to Ju Young Shin, Ph.D., A.P.R.N., A.N.P-C., an alumni of The Edmond J. Safra Visiting Nurse Faculty Program (EJS-VNF) at the Parkinson’s Disease Foundation (PDF).
She has spent her career answering that question to help her patients to live better. After undergoing the EJS-VNF program at PDF in 2013, she turned her attention to Parkinson’s disease (PD). Now she’s conducting research into helping people with PD take charge, and live better through simple everyday means, like managing medications. Here’s our interview with her.