As a young neurologist, PDF’s investment in my two-year fellowship — and its annual investment in my fellow research leaders in the amount of $4.6 million — enabled me and others to join the team fighting PD. But we need your donation to help us meet our goal of ending the disease. When you donate by Thursday, December 31st, your donation will be doubled by the PDF Board of Directors and friends for up to $500,000!
Because despite Parkinson’s disease, I live a rich and full life. Some blessings come to mind:
You may have noticed that PDF has opened up applications for individuals interested in joining our People with Parkinson’s Advisory Council. Our members, all people living with PD and care partners, are driving PDF’s goal of ending Parkinson’s disease.
Each member has made unique contributions to PDF’s work to mobilize leaders in science, health care and the patient community to work together toward a cure.
How do they do it? Here are four ways:
Yes — palliative care is specialized medical care that focuses on providing, “relief from the symptoms of stress of a serious illness,” as PDF Research Advocate Kirk Hall explained in an earlier blog. Although often mistaken for end-of-life care, the definition of palliative care is actually very broad. On the other hand, hospice care is designed to improve quality of life through pain relief and symptom management for individuals facing end-of-life. It is important to understand the difference between the two types of care, and how both can benefit people with Parkinson’s disease.
How can we improve hospital care for people with Parkinson’s disease (PD)? When people with Parkinson’s visit the hospital (usually for a non PD-related health condition), they can experience longer stays and more often need rehabilitation than those without the disease.
One challenge facing the health professionals responsible for care is the need for updated information on Parkinson’s disease. Luckily, Gerry Altmiller, Ed.D., A.P.R.N., AC.N.S.-B.C., an alumni of The Edmond J. Safra Visiting Nurse Faculty Program (EJS-VNF) at the Parkinson’s Disease Foundation (PDF), is helping to make that happen.
Has a physical therapist helped your life with Parkinson’s disease (PD)? This month, we join with the American Physical Therapy Association (APTA) in recognizing National Physical Therapy Month, which thanks physical therapists and physical therapy assistants for their efforts to help people to improve and restore movement.
For many people with PD, physical therapy is an important part of their treatment plan, and their physical therapist is an important member of the health care team.