How are you putting your passions to work for Parkinson’s? Each year, PDF Champion Dawn Judson puts her passion for offroading and and for her business, Bikini Offroad, to use by hosting Shake, Rattle and Crawl. The two-day off-road vehicle event is held in Marble, TX to benefit PDF.
The event offers drives on jeeps, ATVs, motorcycles and trucks on the scenic trails and hills of the Hidden Falls Adventure Park, as well as live music, a scavenger hunt, a raffle and dinner.
This year, Dawn and her family and friends raised $5,500 … bringing them to cumulative total of $16,000 since 2013! How does she do it? Read our interview with Dawn to learn why the cause is so important to her and how she puts this event together each year.
A few weeks ago, I attended my first American Academy of Neurology (AAN) meeting, which was held in Washington, DC. This was the 67th annual meeting of the AAN, which brings together 10,000 neurologists and neuroscientists working to bring the best patient care and innovative research to the field of neurology.
What should the PD community know about this gathering of professionals fighting their disease? Among the many highlights, here are a few of the more notable ones:
How are we preparing the next generation of nurses to care for the growing population of people with Parkinson’s? The alumni of The Edmond J. Safra Visiting Nurse Faculty Program (EJS-VNF) at PDF are doing their part. Alumni of the program, such as Alpa Uchil, M.P.H., R.N., a nurse at The Johns Hopkins University (JHU) School of Medicine, undergo the “train the trainer” curriculum, so that they can, in turn, educate their nursing students.
We sat down with Ms. Uchil, who completed the program in 2014, to understand her work in Parkinson’s and how the EJS-VNF program has made an impact. She’s not only sharing the lessons she learned with students at JHU in Baltimore, but she’s also bringing them online to colleagues in India.
Nancy Redkey (far right) with walkers and PDF staff.
Last Sunday, the Parkinson’s Disease Support Group of the Mid-Hudson Valley, Inc., hosted their fifth annual Walk Over Water in Poughkeepsie, NY, to benefit the Parkinson’s Disease Foundation.
More than 150 people attended, bringing the walk’s five-year fundraising total to $80,000. Not only that, the event continues to garner greater support from the community, including businesses and government. This year, NY State Senator Sue Serino joined to declare April as Parkinson’s Awareness Month, along with County Executive Marc Molinaro.
How do they do it? Read our interview with group leader Nancy Redkey, as she reflects on the annual walk, what inspires her to make a difference and tip on how to start your own walk.
Which part of living with Parkinson’s disease should be the priority for scientists to study? For Diane Cook the answer is: cognitive issues.
She submitted her answer through the Second Annual PDF Community Choice Research Awards survey. Now she is urging you to share yours by Thursday, April 30. Diane worked closely with PDF to develop the first Community Choice Research Awards survey last year, which are a “people’s choice” for PD research grants. The ProjectSpark Foundation run by Diane’s children donated funds for the awards.
Hear from Diane about why the “people’s choice” awards are critical for PD research, why she answered cognitive issues on her survey and why she urges you to take the survey too — today.
A picture is worth a thousand words — that’s how the old saying goes. And this has certainly been the case for Wendell Lowe’s photograph, “Day by Day.”
His image, which appears in the month of April in PDF’s 2015 Creativity and Parkinson’s Calendar, speaks volumes through an artistic depiction of a simple everyday item — the pillbox.
What does the pillbox image mean to you? For many people — not only those affected by Parkinson’s, but also for anyone who has experienced a serious illness or cared for aging parents, it so quickly speaks volumes.
Without any words, we see, hear and remember everything the pillbox means — the nagging symptoms, the complicated medication schedules PD requires, the times we set reminders, the times we forget a dose … the daily effort it takes to fight a chronic disease. Find out the story behind the image and Wendell’s participation in PDF’s Creativity and Parkinson’s Project, and what it means for him to share his work with the PD community.