Triathlon for Dad: A Q&A with Mark Macenas

Mark MacenasWhat sparks a PDF Champion’s desire to complete a triathlon for Parkinson’s research? For Mark Macenas of Durham, NC, who completed the Wilmington Sprint Triathlon on September 19, it was watching his dad’s fight with Parkinson’s disease.

And for this avid athlete, the 1,500-meter swim, 12-mile bike ride and 5K run weren’t challenging enough. Mark, a firefighter and EMT of more than 14 years, also wore his full firefighting gear (decked out in PDF stickers) for a portion of the race. Mark has since raised more than $2,200 for PDF.

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Et Tu Nilotinib?: Understanding Headlines about an Anti-Cancer Drug for PD

jbeck.jpgThe Society for Neuroscience annual meeting, which took place last week in Chicago, IL, is a place where the latest preliminary data in neuroscience is presented. True to form, there was an interesting abstract presented by Fernando Pagan, M.D. and colleagues from Georgetown University Hospital which suggested a potential treatment for those with Parkinson’s disease (PD). At the heart of the presentation, Dr. Pagan and colleagues reported that in a small trial, an anti-cancer drug called nilotinib was able to reverse both the movement symptoms and cognitive decline of people with PD involved in the study.

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PDF Reconoce el Mes Nacional de la Hispanidad (PDF Recognizes National Hispanic Heritage Month)

hispanicheritage3La herencia y cultura Hispana se celebra durante el Mes de la Hispanidad (15 de Septiembre al 15 de Octubre). Aquí en PDF, en nuestra misión de servir al millón de estadounidenses que viven con la Enfermedad de Parkinson, reconocemos la evolución de la comunidad de habla hispana en los EE.UU., ofreciendo materiales y recursos educativos en Español.

Estas publicaciones son una recopilación de preguntas frecuentes, y una serie de hojas informativas sobre temas relacionados con el Parkinson.

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Where Can Women with Parkinson’s Turn?

Veronica Todaro, M.P.H.“I asked one of the best doctors I have seen — and I have worked with a few — about the effect, if any, of menopause on Parkinson’s disease. Her response was ‘estrogen doesn’t cause Parkinson’s disease,’ which wasn’t my question at all. What I remember about her answer was wondering: where can I turn for a better one?”

It is striking just how similar Lisa Cone’s comments are to those of 25 other women who joined the Parkinson’s Disease Foundation (PDF) last month in launching our Women and PD Initiative, the first national coordinated effort to improve the health and well-being of women with Parkinson’s disease, with a three-day conference in New Jersey.
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Letter from Leadership: My Take on PDF’s Strategic Plan

erobin.jpgIf you have read the cover article in the Fall 2015 issue of our newsletter, News & Review, you already know that PDF has created a strategic plan to strengthen and accelerate our fight to advance the cure, and care, of Parkinson’s disease.

As I enter my 20th anniversary year as chief executive officer of the Parkinson’s Disease Foundation, the new plan is both sobering and exciting.

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