I’m a person living with Parkinson’s disease. Because of investment from the Parkinson’s Disease Foundation, I am also a trained Research Advocate and a member of the team ending PD. But we need your help.
After my diagnosis in 2008, I wasn’t sure how to make a difference. But by training with PDF’s Parkinson’s Advocates in Research (PAIR) program, I realized that patient advocates have a critical role to play. Now I’m working on the front lines with PDF-funded researchers to solve, treat and end PD.
But we need your donation to help our team, including Research Advocates like me, meet our goals. That’s why, this month, your support goes further. All donations made by Thursday, December 31, will be matched by the PDF Board of Directors and friends for up to $500,000! Read More
Do you hope for new treatments for PD? At the Parkinson’s Disease Foundation, we do. In fact, it’s the reason we exist. But how do we find them? And would you believe me if I told you the fava bean played an important role in the current gold-standard treatment for PD?
When we think of finding better PD treatments, we often think of clinical trials — the final stage of research before PD drugs come to market. But there’s a crucial step at the very beginning of the pipeline that makes new drugs possible — basic science.
Basic science looks at the building blocks of the brain, the cells and the chemical reactions that make it possible to walk, smile or even read a book. It also looks at what goes wrong when someone has PD. Often conducted in labs, it involves studying cells or animals to get a close-up view of how the brain works. Every drug approved by the FDA began with basic science.
Basic science is so important that PDF invests $4 million a year on it. In ‘Back to Basics,” we will show how basic science is helping PDF come closer to solving, treating and ending PD.
“Will Parkinson’s disease impact my career? Will I still be able to work?”
After a Parkinson’s disease diagnosis, these are common yet difficult questions as individuals wonder how symptoms will progressively impact the future.
Kirk Gibson, 1988 (Credit: AP Photo/Rusty Kennedy)
Recently, well-known public figures, including professional athletes and elected officials, have put the issue of employment with PD back in the headlines. Last month, former Major League Baseball player Kirk Gibson, who announced his PD diagnosis just a few months ago, was back in the headlines as he interviewed for a new position with the Los Angeles Dodgers. Several news articles questioned whether his Parkinson’s disease would affect his ability to do the job.
One week later, Geno Martini, Mayor of Sparks, NV, revealed that he had been diagnosed with PD in 2012. Mayor Martini expressed how difficult it was for him to go public with the diagnosis.
Kirk Gibson and Mayor Martini may be in the public eye, but they are not alone. At the Parkinson’s Disease Foundation (PDF), we often hear questions about the same issues – when and if PD will affect someone’s ability to work, and when and if to reveal a diagnosis to an employer. What should you know?
I’m a nurse specializing in Parkinson’s disease. Because of investment from the Parkinson’s Disease Foundation, I’m helping to expand the team of nurses who can treat and end PD. And we need your help!
A few years ago, as a nursing educator, I was troubled to see that we were leaving the next generation of nurses unprepared to care for people with Parkinson’s disease — in fact, the textbook included only one sentence on PD! But with PDF’s $600,000 investment in health care leaders — including training to prepare the next generation of nurses — this is changing.
By PDF Champion Rachel Isenberg
Today is #GivingTuesday, a national day of giving that challenges the public to give back to a charity of choice. This #GivingTuesday, I’m asking you to help me raise awareness of PDF’s work to end Parkinson’s.
I ask for your help because PDF’s work is close to my heart: my mother lives with Parkinson’s and my late grandfather also lived with the disease. For the past six years, I have completed a “summer challenge” to raise funds and awareness for PDF. I have scaled mountains, biked across states, and kayaked and ran in order to raise over $27,000 for PDF (so far!).
Kirk Hall (back row, middle) & Gil Thelen (second from right) at the PDF Conference on Palliative Care.
As part of our scientific funding, the Parkinson’s Disease Foundation (PDF) is investing more than $90,000 in Conference Awards in 2015.
Through this program, we fund gatherings of experts to address unsolved questions in Parkinson’s, such as, “how can we improve palliative care in Parkinson’s at every stage of the disease?”
In October, we hosted a conference to answer this question. Led by Benzi Kluger, M.D. of the University of Colorado, it included a global group of scientists, doctors, health professionals and PDF Research Advocates Kirk Hall of Denver, CO, and Gil Thelen of Tampa, FL. Below, Kirk and Gil report back on what happened and what can be done to improve palliative care for people with PD.