“I used to be a ‘do-er.’ Now I’m a ‘half do-er.’” These are the words Kris Gjerde, a PDF Advocate from St. Paul, MN, used to explain why she voted for apathy in the Third PDF Community Choice Research Awards survey. She wants solutions so she can keep doing the things she loves. Since the survey launched earlier this month, she and more than 500 people with Parkinson’s and care partners have voted for their research priorities, ranging from sleep issues and anxiety, to gait difficulties and dyskinesia. Why is Kris’ feedback — and yours — so important?
At PDF, our strategy for ending Parkinson’s is to build a team of leaders in research, health care and the patient community and mobilize them to work together toward the cure. That’s one reason we were excited to see 100 members of the PDF team together at the 4th World Parkinson Congress (WPC) in Portland, OR. One place our team showed their collaborative spirit was in the poster presentations. Throughout the week, the PDF team presented posters sharing advancements in PD research and care. Many PDF posters, several of which are highlighted below, were authored by teams comprising PD professionals (scientists, doctors, nurses), staff and PDF patient… Read More
What happens when thousands of people touched by Parkinson’s disease get together? That’s exactly what’s happening at the 4th World Parkinson Congress (WPC) in Portland, OR, where a record 4,500 people PD, care partners, researchers, and health professionals from around the globe have gathered to advance treatments and a cure. The answer? A lot happens. The WPC is chock full of educational seminars, scientific sessions, roundtables, poster presentations, music performances, exercise, yoga and more. The hardest part is choosing where to go. Here’s an update on what the PDF team saw and did on day 2 (Wednesday).
This week, the Parkinson’s Disease Foundation is on site at the 4th World Parkinson Congress (WPC) in Portland, OR. Our team of 100 staff, patient advocates and PDF-supported researchers and health professionals joins more than 4,000 delegates from around the globe who are all working toward the same goal: a world without Parkinson’s. Each day, we’ll bring reports to you. Yesterday (Tuesday) was a pre-congress day before the formal program had begun, but it kicked off in full force! Here is what our team saw and heard.
Are you planning to attend the 4th World Parkinson Congress (WPC) in Portland, OR? This global event brings together people with Parkinson’s, care partners, scientists and health professionals. PDF will be there from Tuesday, September 20 through Friday September 23 with members of our team working to end Parkinson’s — leaders in research, health care and the patient community. We are excited that the PDF team includes 15 of our talented nurse educators — all Scholars from The Edmond J. Safra Visiting Nurse Faculty Program at PDF. Many of our nurse Scholars are presenting posters on their research to advance PD… Read More
Is constipation the most disabling symptom of Parkinson’s disease (PD)? It may be surprising, but many people with PD report to the Parkinson’s Disease Foundation (PDF) that the most bothersome aspects of their disease aren’t tremor or stiffness, but instead are nonmotor symptoms such as constipation and fatigue. Luckily, researchers are starting to better understand these symptoms and nurses such as Jean S. MacFadyen, Ph.D., R.N., a 2011 Scholar of The Edmond J. Safra Visiting Nurse Faculty Program (EJS-VNF) at PDF are helping people with Parkinson’s to learn about and manage them. We sat down with Dr. MacFadyen to learn about her experience… Read More