Is constipation the most disabling symptom of Parkinson’s disease (PD)? It may be surprising, but many people with PD report to the Parkinson’s Disease Foundation (PDF) that the most bothersome aspects of their disease aren’t tremor or stiffness, but instead are nonmotor symptoms such as constipation and fatigue. Luckily, researchers are starting to better understand these symptoms and nurses such as Jean S. MacFadyen, Ph.D., R.N., a 2011 Scholar of The Edmond J. Safra Visiting Nurse Faculty Program (EJS-VNF) at PDF are helping people with Parkinson’s to learn about and manage them. We sat down with Dr. MacFadyen to learn about her experience… Read More
Do you or a loved one experience dyskinesias as part of Parkinson’s disease (PD)? The Parkinson’s Disease Foundation (PDF) has exciting news that may affect those of you who experience levodopa-induced dyskinesias (LIDs), the twisting and writhing movements that occur when people take levodopa. A few months ago, the Food and Drug Administration (FDA) granted orphan drug status to an experimental PD medication called eltoprazine, which is designed to ease LIDs. This status acknowledges that the drug fills an important unmet need (if approved, it would be the first drug available to treat LIDs) and may allow the drug to become available… Read More
“Can’t” isn’t part of Alan Zimmerman’s vocabulary. That’s why he is on a mission to end Parkinson’s disease, along with an enthusiastic team. This month, he and fellow members of the PDF People with Parkinson’s Advisory Council (PPAC) are launching a special team fundraiser to support PDF research programs. Their goal? Raise $25,000 to support PDF’s Community Choice Research Awards, which support research into unmet needs in PD that are identified by the community. Hear from Alan, known by friends as “Z man,” about why he’s excited to work with his PPAC team to make a difference.
When was the last time you danced? In recent years, the Parkinson’s Disease Foundation (PDF) has seen growing popularity and availability of dance programs designed specifically for people with Parkinson’s disease. In fact, the trend was discussed a few weeks ago in a National Public Radio segment. Have you or a patient or a loved one tried dance classes for PD? If not, what should you know and how can you find a class? Let’s explore the answers. And don’t miss our video, “A Celebration of Movement,” which may leave you inspired to get up and dance.
Did you know that anxiety and depression are common in Parkinson’s disease (PD)? Both of these fall under the umbrella of mood disorders. But despite being common in PD, they often go undiagnosed (or incorrectly diagnosed) and under-treated. By combining forces, a scientist-patient advocate team involving Alit Stark-Inbar, Ph.D., at UC Berkeley and Ronnie Wanetick, a PDF Research Advocate, is finding solutions. The two received a PDF PAIR Leadership Award to study EMOTE, an iPad app that can help to monitor depression and anxiety throughout the day, and even offers games to help ease symptoms. While the app is still… Read More
Are there steps a person with Parkinson’s can take to live better with the disease? Yes, according to Ju Young Shin, Ph.D., A.P.R.N., A.N.P-C., an alumni of The Edmond J. Safra Visiting Nurse Faculty Program (EJS-VNF) at the Parkinson’s Disease Foundation (PDF). She has spent her career answering that question to help her patients to live better. After undergoing the EJS-VNF program at PDF in 2013, she turned her attention to Parkinson’s disease (PD). Now she’s conducting research into helping people with PD take charge, and live better through simple everyday means, like managing medications. Here’s our interview with her.