In the past year or so, PDF has seen an increasing number of articles broaching the topic of end-of-life planning — how to talk with a person about his or her care, the role of the family, whether drastic life-saving measures should be taken and whether it is preferable to spend those last days home or at the hospital. Just this week, Barron H. Lerner, M.D., was the latest to weigh in on the topic of end of life with his piece, Overruling My Father, appearing in the New York Times. Dr. Lerner, a physician at NYU Langone Medical Center,… Read More
Why does mom shuffle and stagger when she walks? What makes grandpa’s hand shake? Will grandma die of Parkinson’s disease (PD)? When there is a diagnosis of Parkinson’s disease in the family, these questions may be on everyone’s minds. If we imagine the experience through the eyes of a child, it is easy to see how such questions can be even more overwhelming.
Who’s talking about sex and Parkinson’s disease? Despite the challenges that some people with Parkinson’s face in regards to sexuality and intimacy (one study showed 87 percent of people with PD experience some sort of issue related to sexuality) the conversation on the topic has been sparse. That is why PDF hosted a webinar on the topic last September with Gila Bronner, M.P.H., M.S.W., C.S.T, which has been viewed by more than 2,000 people. And it’s why why we noticed last week when comedy writer Marc Jaffe published an essay published in the New York Times, Finding Equilibrium in Seesawing Libidos, covering… Read More
The start of 2015 has been noteworthy for those with Parkinson’s disease (PD) as two new therapies – Rytary™ and Duopa™ – were approved by the FDA at the start of January. Both therapies are updates to the gold-standard treatment of carbidopa/levodopa for those with PD. Manufacturers of both therapies hope to have the medications available on pharmacy shelves in the next few months. Yes, carbidopa/levodopa first came into use around 1970. However, these new therapies address a real need that current carbidopa/levodopa or Sinemet cannot meet … and that is good news. PDF has covered what Rytary and Duopa are (check out my… Read More
How do you show someone with Parkinson’s that you care? Family and friends often rally around a loved one with PD, showing their support in a variety of ways. During November, which is National Family Caregivers Month, PDF recognizes, “All the Ways Care Partners Care.” Our campaign highlights four diverse stories, including the Hardoby family of Rahway, NJ. Greg Hardoby lives with PD and works with PDF as a volunteer Research Advocate and Champion. Here, he and his daughter Ann Marie discuss how their family copes with PD.
What is the relationship between a person with Parkinson’s disease and his or her caregiver? In a special post written during National Family Caregivers Month, we hear perspectives from Marc Sherman, J.D., a person with PD and Elaine Casavant, R.N., a care partner. Both are members of PDF’s People with Parkinson’s Advisory Council.