Awe-inspiring. It’s a word Dan Novak, Ph.D., Chair of the PDF People with Parkinson’s Advisory Council, used recently when describing the World Parkinson Congress (WPC). Last night in Portland, OR, it proved true. It captured the feeling of walking into a room with 4,000 people (people living with Parkinson’s, care partners, researchers and health professionals) who all share one goal — a world without Parkinson’s. As part of this week’s WPC reports, see our summary of last night’s awe-inspiring Opening Ceremony.
This week, the Parkinson’s Disease Foundation is on site at the 4th World Parkinson Congress (WPC) in Portland, OR. Our team of 100 staff, patient advocates and PDF-supported researchers and health professionals joins more than 4,000 delegates from around the globe who are all working toward the same goal: a world without Parkinson’s. Each day, we’ll bring reports to you. Yesterday (Tuesday) was a pre-congress day before the formal program had begun, but it kicked off in full force! Here is what our team saw and heard.
Are you looking for practical tips for managing Parkinson’s disease? Join the Parkinson’s Disease Foundation (PDF) newest series of PD ExpertBriefings beginning on Tuesday, September 13. The newest series includes six free online seminars designed to cover gaps in PD education on topics such as travel, pain and sleep. And we have you to thank for the topics! In PDF’s annual survey about Parkinson’s education, 1,000 of you responded, letting us know which topics were most important. Your feedback helped form this series.
Richard Herdegen of Meridian, ID, sees his creativity as a window of opportunity for life with Parkinson’s disease. Recently, one of his glass mosaics entitled, “Rainbow of Life” (pictured at left) was selected to appear in PDF’s 2016 Creativity and Parkinson’s Calendar for the month of July. The retired software engineer has been creating art for decades, using glass as his primary medium. But he says that after his Parkinson’s diagnosis in 2011 at the age of 66, the activity became more than just a way to relax and find solace, it also became a way to fight his disease. Learn more… Read More
By Gil Thelen How about that retired Philadelphia-area organizational development consultant? After his Parkinson’s disease (PD) diagnosis, he surprisingly (to himself) found the capacity to become an accomplished folk painter and soon-to-be-published poet. Or the retired Richmond, VA, dentist who raises buckets of money for research programs of the Parkinson’s Disease Foundation (PDF)? Or the light-up-the-room, former pediatric office manager from Denver, CO? Not to mention the research coordinator named Chi Chi. And finally, the wisecracking, not-so-retired former newspaper editor and college professor from Tampa, FL (me). That’s a taste of the 20 people with PD and professionals who trained last month as… Read More
The Parkinson’s Disease Foundation (PDF) and members of the Parkinson’s community continue to mourn the loss of Muhammad Ali and celebrate his efforts to raise awareness of the disease. In the days since his passing, many people in the community have shared reflections on his role as the first celebrity to live publicly with Parkinson’s. Below, hear from PDF volunteer leaders — members of our People with Parkinson’s Advisory Council — as they share their reactions and insights. (Credit: Kevin Mazur/ Muhammad Ali at PDF Gala, June 1, 1995/Getty Images)