Blog Archives: Living with PD

May We Have This Dance?

When was the last time you danced? In recent years, the Parkinson’s Disease Foundation (PDF) has seen growing popularity and availability of dance programs designed specifically for people with Parkinson’s disease. In fact, the trend was discussed a few weeks ago in a National Public Radio segment. Have you or a patient or a loved one tried dance classes for PD? If not, what should you know and how can you find a class? Let’s explore the answers. And don’t miss our video, “A Celebration of Movement,” which may leave you inspired to get up and dance.

The Power of Self in Parkinson’s: Q&A with Diane Cook

Are people newly diagnosed with Parkinson’s finding the right support? Many people, when first diagnosed with Parkinson’s, are given little guidance on facing life with a chronic progressive disease. And that diagnosis is life changing — it entails changes to health, relationships, family life, employment and finances. Diane Cook, a member of the PDF People with Parkinson’s Advisory Council, is passionate about changing this. She wants to support the newly diagnosed so they can begin their PD journey on the right foot. Over the past few years, she has developed a program called PD SELF. It provides tools and information… read more Read More

Weighing in on Weight Management in PD

Have you noticed any changes in your weight due to Parkinson’s disease? You are not alone. It is critical for all of us to maintain a healthy weight. For people with Parkinson’s disease, this might be more difficult to do because of PD symptoms or medications. As January is National Healthy Weight Awareness Month, our team wanted to bring awareness to the issue of weight management in Parkinson’s disease. Here are a few little-known facts:

Finding Inspiration in the Forest & the Trees: Q&A with Artist Michael Abbott

When Michael Abbott of Panama City Beach, FL, looks at the woods surrounding the river near his home, he doesn’t just see trees. He sees his next creation. After his diagnosis of young onset Parkinson’s in 2004, the retired firefighter and former US Marine started making sculptures of trees using old copper wires. He has since found it to be a therapeutic outlet.  Recently, one of his sculptures entitled, “Autumn Bliss” (pictured at left) was selected to appear in PDF’s 2016 Creativity and Parkinson’s Calendar for the month of February. Find out how creativity has impacted Michael’s life and what it… read more Read More

Employment with PD: Working it Out

“Will Parkinson’s disease impact my career? Will I still be able to work?” After a Parkinson’s disease diagnosis, these are common yet difficult questions as individuals wonder how symptoms will progressively impact the future. Recently, well-known public figures, including professional athletes and elected officials, have put the issue of employment with PD back in the headlines. Last month, former Major League Baseball player Kirk Gibson, who announced his PD diagnosis just a few months ago, was back in the headlines as he interviewed for a new position with the Los Angeles Dodgers. Several news articles questioned whether his Parkinson’s disease… read more Read More

Improving Palliative Care Throughout the PD Journey: Q&A with Kirk Hall and Gil Thelen

As part of our scientific funding, the Parkinson’s Disease Foundation (PDF) is investing more than $90,000 in Conference Awards in 2015. Through this program, we fund gatherings of experts to address unsolved questions in Parkinson’s, such as, “how can we improve palliative care in Parkinson’s at every stage of the disease?” In October, we hosted a conference to answer this question. Led by Benzi Kluger, M.D. of the University of Colorado, it included a global group of scientists, doctors, health professionals and PDF Research Advocates Kirk Hall of Denver, CO, and Gil Thelen of Tampa, FL. Below, Kirk and Gil report… read more Read More