Blog Archives: Living with PD

Back to Basics: New Drug for Dyskinesias in Clinical Trials

Do you or a loved one experience dyskinesias as part of Parkinson’s disease (PD)? The Parkinson’s Disease Foundation (PDF) has exciting news that may affect those of you who experience levodopa-induced dyskinesias (LIDs), the twisting and writhing movements that occur when people take levodopa. A few months ago, the Food and Drug Administration (FDA) granted orphan drug status to an experimental PD medication called eltoprazine, which is designed to ease LIDs. This status acknowledges that the drug fills an important unmet need (if approved, it would be the first drug available to treat LIDs) and may allow the drug to become available… read more Read More

April Awareness x2: Parkinson’s and Occupational Therapy

Most of us know that April is Parkinson’s Awareness Month. But did you know that April is also National Occupational Therapy Month? At PDF, we are excited to see these two awareness months coincide. We have been working alongside occupational therapists (OTs) in recent years to raise awareness of the ways in which OT can improve the lives of people with Parkinson’s. For example, PDF added a webinar and fact sheet to our library of educational materials, both of which discuss benefits of occupational therapy for people with Parkinson’s and practical tips for working with an OT. We also launched… read more Read More

National Nutrition Month: Why it Matters to People with PD

What should you know about nutrition in Parkinson’s disease (PD)? It is important for all of us to maintain a healthy diet to feel our best and stay energized. This is especially true for people living with PD. As March is National Nutrition Month, our team wanted to shed light on the importance of nutrition in PD. According to Heather Zwickey, Ph.D., who recently led PDF’s webinar on, “Nutrition and PD,” developing good nutritional habits can help people to live better with the disease. How?

Visiting Nurse Notes: Scholar & Student Partner with Community Health Workers in Nicaragua

How would you help your patients with PD if levodopa were unavailable? It is a difficult question. But it is one that Elizabeth K. Keech, Ph.D., R.N., an adjunct clinical assistant professor from Villanova University College of Nursing and a scholar with The Edmond J. Safra Visiting Nurse Faculty Program at PDF, sought to answer along with one of her students, Elizabeth Yates, B.S.N., R.N. The EJS-VNF Program at PDF trains nursing faculty in Parkinson’s disease, so that they can prepare the next generation of nurses — their students — to care for the growing number of people living with… read more Read More

May We Have This Dance?

When was the last time you danced? In recent years, the Parkinson’s Disease Foundation (PDF) has seen growing popularity and availability of dance programs designed specifically for people with Parkinson’s disease. In fact, the trend was discussed a few weeks ago in a National Public Radio segment. Have you or a patient or a loved one tried dance classes for PD? If not, what should you know and how can you find a class? Let’s explore the answers. And don’t miss our video, “A Celebration of Movement,” which may leave you inspired to get up and dance.

The Power of Self in Parkinson’s: Q&A with Diane Cook

Are people newly diagnosed with Parkinson’s finding the right support? Many people, when first diagnosed with Parkinson’s, are given little guidance on facing life with a chronic progressive disease. And that diagnosis is life changing — it entails changes to health, relationships, family life, employment and finances. Diane Cook, a member of the PDF People with Parkinson’s Advisory Council, is passionate about changing this. She wants to support the newly diagnosed so they can begin their PD journey on the right foot. Over the past few years, she has developed a program called PD SELF. It provides tools and information… read more Read More