Blog Archives: Living with PD

Caring as a Team: Q&A with Paul and Jane Gaydos

How do you show someone with Parkinson’s that you care? Family and friends often rally around a loved one, showing their support in a variety of ways. During November, which is recognized as National Family Caregivers Month, PDF recognizes, “All the Ways Care Partners Care.” Our campaign highlights four diverse stories, including the story of Paul and Jane Gaydos, of Cleveland, OH, PDF Research Advocates (Jane lives with PD) who have been married for 47 years.

All the Ways Care Partners Care: Q&A with Elaine & Len Casavant

How do you show someone with Parkinson’s that you care? Family and friends often rally around a loved one, showing their support in a variety of ways. During November, which is recognized as National Family Caregivers Month, PDF recognizes, “All the Ways Care Partners Care.” Our campaign highlights four diverse stories, beginning with Elaine Casavant, R.N., a member of the PDF People with Parkinson’s Advisory Council, whose husband Len lives with Parkinson’s.

How OT Can Improve Daily Life with PD: A PD ExpertBriefing Review

The following Q&A with Claire Berman, member of PDF’s People with Parkinson’s Advisory Council, discusses PDF’s PD ExpertBriefing: Occupational Therapy and PD: Tips for Healthy Living. What role, if any, can an occupational therapist play in helping someone with Parkinson’s continue to enjoy a reasonable quality of life? A very helpful one, I learned from the PD ExpertBriefing led by Sue Berger, Ph.D. and Linda Tickle-Degnan, Ph.D. on September 9, 2014.

Robin Williams, PD and Depression

The media response to the tragic suicide of the gifted actor Robin Williams has included much speculation about a possible connection between his recent diagnosis with Parkinson’s disease, or the medicines used to treat it, with the depression that apparently prompted him to take his life. At the Parkinson’s Disease Foundation, we are not privy to the details of his diagnosis, or the prescriptions he may have used to treat it. Nor do we have any information about any other drugs he is rumored to have used, or whether these may have contributed to his depression.

Creativity and the Parkinson’s Mind

The Parkinson’s Disease Foundation has long recognized the creative abilities that many people with Parkinson’s disease acquire when living with the disease. We even capture many of these expressions on our website with some of the best examples appearing in our acclaimed annual calendar (which you can now pre-order for 2015 here).

Advocate Perspective on Colorado Patient-Centered Research Initiatives

The following blog post from PDF Research Advocate Kirk Hall of Denver, CO is adapted from Kirk’s post on his own blog, shakypawsgrampa.blogspot.com. Last year, I wrote a blog post about the World Parkinson Congress (WPC) in Montreal, which highlighted a, “movement toward more patient engagement in the PD world.” Before giving an update on patient engagement in my own community in Colorado, here is a brief excerpt from that post from October 2013.