Blog Archives: Living with PD

Weighing in on Weight Management in PD

Have you noticed any changes in your weight due to Parkinson’s disease? You are not alone. It is critical for all of us to maintain a healthy weight. For people with Parkinson’s disease, this might be more difficult to do because of PD symptoms or medications. As January is National Healthy Weight Awareness Month, our team wanted to bring awareness to the issue of weight management in Parkinson’s disease. Here are a few little-known facts:

Finding Inspiration in the Forest & the Trees: Q&A with Artist Michael Abbott

When Michael Abbott of Panama City Beach, FL, looks at the woods surrounding the river near his home, he doesn’t just see trees. He sees his next creation. After his diagnosis of young onset Parkinson’s in 2004, the retired firefighter and former US Marine started making sculptures of trees using old copper wires. He has since found it to be a therapeutic outlet.  Recently, one of his sculptures entitled, “Autumn Bliss” (pictured at left) was selected to appear in PDF’s 2016 Creativity and Parkinson’s Calendar for the month of February. Find out how creativity has impacted Michael’s life and what it… read more Read More

Employment with PD: Working it Out

“Will Parkinson’s disease impact my career? Will I still be able to work?” After a Parkinson’s disease diagnosis, these are common yet difficult questions as individuals wonder how symptoms will progressively impact the future. Recently, well-known public figures, including professional athletes and elected officials, have put the issue of employment with PD back in the headlines. Last month, former Major League Baseball player Kirk Gibson, who announced his PD diagnosis just a few months ago, was back in the headlines as he interviewed for a new position with the Los Angeles Dodgers. Several news articles questioned whether his Parkinson’s disease… read more Read More

Improving Palliative Care Throughout the PD Journey: Q&A with Kirk Hall and Gil Thelen

As part of our scientific funding, the Parkinson’s Disease Foundation (PDF) is investing more than $90,000 in Conference Awards in 2015. Through this program, we fund gatherings of experts to address unsolved questions in Parkinson’s, such as, “how can we improve palliative care in Parkinson’s at every stage of the disease?” In October, we hosted a conference to answer this question. Led by Benzi Kluger, M.D. of the University of Colorado, it included a global group of scientists, doctors, health professionals and PDF Research Advocates Kirk Hall of Denver, CO, and Gil Thelen of Tampa, FL. Below, Kirk and Gil report… read more Read More

Four Ways People with PD Are Guiding Our Work to End PD

You may have noticed that PDF has opened up applications for individuals interested in joining our People with Parkinson’s Advisory Council. Our members, all people living with PD and care partners, are driving PDF’s goal of ending Parkinson’s disease. Each member has made unique contributions to PDF’s work to mobilize leaders in science, health care and the patient community to work together toward a cure. How do they do it? Here are four ways: