Blog Archives: Living with PD

Thanking Nurses During National Nurses Week

Who’s on your Parkinson’s team? For many people with Parkinson’s, nurses are critical members throughout their journey with the disease. In fact, nurses are often the first point of contact for many people with Parkinson’s disease upon receiving a diagnosis. In recent years, PDF has been working alongside nursing leaders to raise awareness of the ways in which nurses improve the lives of people with Parkinson’s and to provide those nurses with the resources they need.  As we are in the midst of National Nurses Week (Friday, May 6 through Thursday, May 12), we want to thank a few nurses… read more Read More

PDF Remembers Quilter Ruth Walters

The Parkinson’s Disease Foundation (PDF) mourns the passing of PDF Creativity Artist Ruth Walters, 90, of Santa Fe, NM, who died on January 19. Ms. Walters’ quilt, “Our Life Together,” is featured in the 2016 PDF Creativity and Parkinson’s Calendar for the month of April, Parkinson’s Awareness Month. “My mom was very proud and happy that her quilt was chosen to appear in the PDF Creativity and Parkinson’s Calendar. She was a passionate and talented quilt artist who loved color, using it to create dazzling beauty. Her creativity carried her through Parkinson’s disease, even when she could no longer sew,”… read more Read More

Back to Basics: New Drug for Dyskinesias in Clinical Trials

Do you or a loved one experience dyskinesias as part of Parkinson’s disease (PD)? The Parkinson’s Disease Foundation (PDF) has exciting news that may affect those of you who experience levodopa-induced dyskinesias (LIDs), the twisting and writhing movements that occur when people take levodopa. A few months ago, the Food and Drug Administration (FDA) granted orphan drug status to an experimental PD medication called eltoprazine, which is designed to ease LIDs. This status acknowledges that the drug fills an important unmet need (if approved, it would be the first drug available to treat LIDs) and may allow the drug to become available… read more Read More

April Awareness x2: Parkinson’s and Occupational Therapy

Most of us know that April is Parkinson’s Awareness Month. But did you know that April is also National Occupational Therapy Month? At PDF, we are excited to see these two awareness months coincide. We have been working alongside occupational therapists (OTs) in recent years to raise awareness of the ways in which OT can improve the lives of people with Parkinson’s. For example, PDF added a webinar and fact sheet to our library of educational materials, both of which discuss benefits of occupational therapy for people with Parkinson’s and practical tips for working with an OT. We also launched… read more Read More

National Nutrition Month: Why it Matters to People with PD

What should you know about nutrition in Parkinson’s disease (PD)? It is important for all of us to maintain a healthy diet to feel our best and stay energized. This is especially true for people living with PD. As March is National Nutrition Month, our team wanted to shed light on the importance of nutrition in PD. According to Heather Zwickey, Ph.D., who recently led PDF’s webinar on, “Nutrition and PD,” developing good nutritional habits can help people to live better with the disease. How?

Visiting Nurse Notes: Scholar & Student Partner with Community Health Workers in Nicaragua

How would you help your patients with PD if levodopa were unavailable? It is a difficult question. But it is one that Elizabeth K. Keech, Ph.D., R.N., an adjunct clinical assistant professor from Villanova University College of Nursing and a scholar with The Edmond J. Safra Visiting Nurse Faculty Program at PDF, sought to answer along with one of her students, Elizabeth Yates, B.S.N., R.N. The EJS-VNF Program at PDF trains nursing faculty in Parkinson’s disease, so that they can prepare the next generation of nurses — their students — to care for the growing number of people living with… read more Read More