This week, the Parkinson’s Disease Foundation is on site at the 4th World Parkinson Congress (WPC) in Portland, OR. Our team of 100 staff, patient advocates and PDF-supported researchers and health professionals joins more than 4,000 delegates from around the globe who are all working toward the same goal: a world without Parkinson’s. Each day, we’ll bring reports to you. Yesterday (Tuesday) was a pre-congress day before the formal program had begun, but it kicked off in full force! Here is what our team saw and heard.
There is nothing like the special bond that exists between grandparents and grandchildren. That’s why, when a grandparent is diagnosed with Parkinson’s, grandchildren are often driven to help the cause. At the Parkinson’s Disease Foundation (PDF) we are often asked, How can I make a difference in honor of my grandma/grandpa with PD? In light of Grandparents Day this Sunday, we are sharing a few favorite stories from grandkids on the PDF team. Get inspired and find ideas for making this Sunday special for your grandparent with PD.
Richard Herdegen of Meridian, ID, sees his creativity as a window of opportunity for life with Parkinson’s disease. Recently, one of his glass mosaics entitled, “Rainbow of Life” (pictured at left) was selected to appear in PDF’s 2016 Creativity and Parkinson’s Calendar for the month of July. The retired software engineer has been creating art for decades, using glass as his primary medium. But he says that after his Parkinson’s diagnosis in 2011 at the age of 66, the activity became more than just a way to relax and find solace, it also became a way to fight his disease. Learn more… Read More
This summer, PDF has been especially inspired by our dedicated group of PDF Champions. These grassroots fundraisers have truly put their passions — whether running, cycling, flying, hiking and hosting garage sales — to work to help PDF #EndParkinsons. Here are their stories.
Are you planning to attend the 4th World Parkinson Congress (WPC) in Portland, OR? This global event brings together people with Parkinson’s, care partners, scientists and health professionals. PDF will be there from Tuesday, September 20 through Friday September 23 with members of our team working to end Parkinson’s — leaders in research, health care and the patient community. We are excited that the PDF team includes 15 of our talented nurse educators — all Scholars from The Edmond J. Safra Visiting Nurse Faculty Program at PDF. Many of our nurse Scholars are presenting posters on their research to advance PD… Read More
By Gil Thelen How about that retired Philadelphia-area organizational development consultant? After his Parkinson’s disease (PD) diagnosis, he surprisingly (to himself) found the capacity to become an accomplished folk painter and soon-to-be-published poet. Or the retired Richmond, VA, dentist who raises buckets of money for research programs of the Parkinson’s Disease Foundation (PDF)? Or the light-up-the-room, former pediatric office manager from Denver, CO? Not to mention the research coordinator named Chi Chi. And finally, the wisecracking, not-so-retired former newspaper editor and college professor from Tampa, FL (me). That’s a taste of the 20 people with PD and professionals who trained last month as… Read More