Blog Archives: Getting Involved

Four Ways People with PD Are Guiding Our Work to End PD

You may have noticed that PDF has opened up applications for individuals interested in joining our People with Parkinson’s Advisory Council. Our members, all people living with PD and care partners, are driving PDF’s goal of ending Parkinson’s disease. Each member has made unique contributions to PDF’s work to mobilize leaders in science, health care and the patient community to work together toward a cure. How do they do it? Here are four ways:

Triathlon for Dad: A Q&A with Mark Macenas

What sparks a PDF Champion’s desire to complete a triathlon for Parkinson’s research? For Mark Macenas of Durham, NC, who completed the Wilmington Sprint Triathlon on September 19, it was watching his dad’s fight with Parkinson’s disease. And for this avid athlete, the 1,500-meter swim, 12-mile bike ride and 5K run weren’t challenging enough. Mark, a firefighter and EMT of more than 14 years, also wore his full firefighting gear (decked out in PDF stickers) for a portion of the race. Mark has since raised more than $2,200 for PDF.

PDF Reconoce el Mes Nacional de la Hispanidad (PDF Recognizes National Hispanic Heritage Month)

La herencia y cultura Hispana se celebra durante el Mes de la Hispanidad (15 de Septiembre al 15 de Octubre). Aquí en PDF, en nuestra misión de servir al millón de estadounidenses que viven con la Enfermedad de Parkinson, reconocemos la evolución de la comunidad de habla hispana en los EE.UU., ofreciendo materiales y recursos educativos en Español. Estas publicaciones son una recopilación de preguntas frecuentes, y una serie de hojas informativas sobre temas relacionados con el Parkinson.

Let’s Make Grandparents Day Special

Don’t grandparents have a way of always making us feel special? Whether it is supporting us at school, cheering us from the sidelines or making our favorite home-cooked meal, they often know just the right thing to say or do. When a grandparent is living with Parkinson’s disease, how can we make them feel special? In honor of national Grandparents Day this Sunday, September 13, we invite you to join the Parkinson’s Disease Foundation in doing just that. It can be as simple as sharing a smile, spending a day together, sending an eCard or raising funds for Parkinson’s disease research.

On Newsstands Now: Dr. De Leon & Family Circle Magazine

Have you picked up the latest issue of Family Circle magazine? If you flip to page 103, you will find a personal story about Parkinson’s disease written by Maria De Leon, M.D., a Research Advocate with the Parkinson’s Disease Foundation and former member of our People with Parkinson’s Advisory Council. For those of you who do not know Dr. De Leon, she is both a movement disorder specialist (a neurologist with specialized training in PD) and a person living with PD. Dr. De Leon’s story in Family Circle traces her journey with PD, from the confusion that arose over her diagnosis… read more Read More

Shake, Rattle & Roll for PD: Q&A with A.C. Woolnough

A.C. Woolnough doesn’t let Parkinson’s disease get him down. He’s been actively involved in the fight against PD since his diagnosis in 2014, in part by volunteering with the Parkinson’s Disease Foundation (PDF). He is not only a member of the PDF People with Parkinson’s Advisory Council, and one of our Research Advocates, he is also a member of our Creativity and PD Project. Now he’s adding another volunteer role to his long PD volunteer resume — fundraiser. He is putting his passion for golf to work as a PDF Champion next Saturday, September 5, when he will host Shake, Rattle & Roll in Sandpoint,… read more Read More