Blog Archives: Getting Involved

From Linda: My First Hours in Montreal

From Linda Morgan, M.B.A., R.Ph., member People with Parkinson’s Advisory Council I arrived early in Montreal for the 3rd World Parkinson Congress, which will officially start on Tuesday. I came in early to be part of an ‘historic’ dinner and meeting between researchers from the Parkinson Study Group (PSG) and those of us involved with Parkinson’s Advocates in Research (PAIR).

From PPAC: Parkinson’s Isn’t Newsworthy … Until It Personally Touches You

By Peggy Willocks, member, PDF People with Parkinson’s Advisory Council April is Parkinson’s Awareness Month. And it won’t be newsworthy that I came all the way from Tennessee to New York to participate in this past Saturday’s Parkinson’s Unity Walk, where about 10,000 people with Parkinson’s, friends and family “walked” through Central Park as a symbolic gesture to raise funding for research. As a member of the Parkinson’s Disease Foundation’s (PDF) Advisory Council, it isn’t newsworthy that I am also here as a voice of the patient in helping to have better and faster approval of therapies for the debilitating… read more Read More

Thank You for Advancing PD Research

Have you ever been part of a Parkinson’s research study? This Parkinson’s Awareness Month, PDF says thank you for helping to bring about better treatments at a faster pace. After all, the only way that new treatments and a cure for Parkinson’s can be found is by ordinary people taking the extraordinary step of volunteering in studies.

A Positive Spin: Creativity and PD

We all appreciate the headlines that help us understand PD symptoms and side effects. But we also find it refreshing to see last week’s selection of stories covering ways to take charge of PD with creativity. Victoria Tane featured in the 2013 Creativity & Parkinson’s Calendar The Science Behind the Spin Last Thursday, we saw a review published on, “The Awakening of Artistic Creativity and Parkinson’s” by Rivka Inzelberg, M.D., in Behavior Neuroscience.  Dr. Inzelberg looked at more than 10 studies investigating, “the ability to produce innovative aesthetic works” in people living with Parkinson’s.  She found that: People with PD who… read more Read More

Fashion to Support Parkinson’s Research

PDF Champion and Founder & CEO of Karma for a Cure, Margaux Minutolo, designs stylish t-shirts to benefit charities close to her heart. Ms. Minutolo designed this stylish “Peace” of Mind crop top to benefit the research efforts of PDF! With every purchase, 5% of the total sale will be donated to PDF. Ms. Minutolo designs will be featured and sold at PDF’s upcoming Carnaval event on Wednesday, January 30.  

"Wow," I Have Parkinson’s: Reactions to A Late Quartet and an Early Retirement

Last month, PDF hosted a special screening of the film, A Late Quartet in New York, NY, followed by a conversation with its Director, Yaron Zilberman, PDF Scientific Director Dr. Stanley Fahn and PDF Research Advocate Pam Quinn. If you haven’t yet heard of this film, which is produced by Entertainment One Films, it stars Philip Seymour Hoffman, Catherine Keener, Mark Ivanir and Christopher Walken as a string quartet struggling to stay together in the face of competing egos and … Parkinson’s disease. As you too often tell us, your neighbors and friends may not truly understand the disease.  So… read more Read More