Blog Archives: Getting Involved

From Kirk: Will You 2x Your Donation to PDF?

I’m a person living with Parkinson’s disease. Because of investment from the Parkinson’s Disease Foundation, I am also a trained Research Advocate and a member of the team ending PD. But we need your help. After my diagnosis in 2008, I wasn’t sure how to make a difference. But by training with PDF’s Parkinson’s Advocates in Research (PAIR) program, I realized that patient advocates have a critical role to play. Now I’m working on the front lines with PDF-funded researchers to solve, treat and end PD. But we need your donation to help our team, including Research Advocates like me, meet… read more Read More

From Rachel: Let’s Make #GivingTuesday about PDF

By PDF Champion Rachel Isenberg Today is #GivingTuesday, a national day of giving that challenges the public to give back to a charity of choice. This #GivingTuesday, I’m asking you to help me raise awareness of PDF’s work to end Parkinson’s. I ask for your help because PDF’s work is close to my heart: my mother lives with Parkinson’s and my late grandfather also lived with the disease. For the past six years, I have completed a “summer challenge” to raise funds and awareness for PDF. I have scaled mountains, biked across states, and kayaked and ran in order to… read more Read More

Improving Palliative Care Throughout the PD Journey: Q&A with Kirk Hall and Gil Thelen

As part of our scientific funding, the Parkinson’s Disease Foundation (PDF) is investing more than $90,000 in Conference Awards in 2015. Through this program, we fund gatherings of experts to address unsolved questions in Parkinson’s, such as, “how can we improve palliative care in Parkinson’s at every stage of the disease?” In October, we hosted a conference to answer this question. Led by Benzi Kluger, M.D. of the University of Colorado, it included a global group of scientists, doctors, health professionals and PDF Research Advocates Kirk Hall of Denver, CO, and Gil Thelen of Tampa, FL. Below, Kirk and Gil report… read more Read More

Four Ways People with PD Are Guiding Our Work to End PD

You may have noticed that PDF has opened up applications for individuals interested in joining our People with Parkinson’s Advisory Council. Our members, all people living with PD and care partners, are driving PDF’s goal of ending Parkinson’s disease. Each member has made unique contributions to PDF’s work to mobilize leaders in science, health care and the patient community to work together toward a cure. How do they do it? Here are four ways:

Triathlon for Dad: A Q&A with Mark Macenas

What sparks a PDF Champion’s desire to complete a triathlon for Parkinson’s research? For Mark Macenas of Durham, NC, who completed the Wilmington Sprint Triathlon on September 19, it was watching his dad’s fight with Parkinson’s disease. And for this avid athlete, the 1,500-meter swim, 12-mile bike ride and 5K run weren’t challenging enough. Mark, a firefighter and EMT of more than 14 years, also wore his full firefighting gear (decked out in PDF stickers) for a portion of the race. Mark has since raised more than $2,200 for PDF.