In this Q&A, Phil Myers shares his thoughts on volunteering as a PDF Research Advocate, and provides tips for individuals thinking of applying for a spot at our upcoming training for new advocates. Phil and his fellow 230 Research Advocates are part of PDF’s Parkinson’s Advocates in Research program. Q. Why did you apply to the PDF Learning Institute? A. A few years ago, my wife had passed away with a parkinsonism and I had recently been diagnosed with Parkinson’s disease. These experiences fueled my desire to be involved in medical research. But I didn’t have a medical background, so… Read More
The following Q&A with Claire Berman, member of PDF’s People with Parkinson’s Advisory Council, discusses PDF’s PD ExpertBriefing: Occupational Therapy and PD: Tips for Healthy Living. What role, if any, can an occupational therapist play in helping someone with Parkinson’s continue to enjoy a reasonable quality of life? A very helpful one, I learned from the PD ExpertBriefing led by Sue Berger, Ph.D. and Linda Tickle-Degnan, Ph.D. on September 9, 2014.
There’s no other way to describe it … I crashed at the Montreal airport. We had left the 3rd World Parkinson Congress (WPC) in plenty of time, but I think everyone leaving the Congress for home that day was trying to catch their plane simultaneously.
In early October, I was in Montreal attending WPC 2013. After a long flight from California, I headed straight to the conference center. The first thing I noticed as I entered the conference center was the presence of people with Parkinson’s (PwPs) everywhere. Several PwPs were accompanied by their caregivers, some traveled with friends and others looking for friends who were also attending WPC. It seemed like PwP from all over the world congregated in Montreal.
As I leave Montreal’s WPC 2013, I think back on how I felt leaving Glasgow’s WPC 2010, and the difference is striking. In Glasgow, I was an attendee two years into my Parkinson’s diagnosis, eagerly absorbing as much as I could by attending every session. By Montreal, I was several years into serving as a PDF Research Advocate, as part of the organization’s Parkinson’s Advocates in Research (PAIR) program.
On the final day of the 3rd World Parkinson Congress, there were many more scientific and educational sessions. Roving reporter and PDF Research Advocate Ronnie Wanetick of Walnut Creek, CA, provided summaries of a few sessions she attended.