Blog Archives: Getting Involved

A.C. Weighs In: Can PD Researchers Study Apathy?

Which aspect about living with Parkinson’s is your priority for researchers to study? For PDF Research Advocate A.C. Woolnough, the answer is: apathy. Apathy, which is a lack of interest or enthusiasm, is a common complaint among people with Parkinson’s and loved ones but has not received much research attention. A.C. shared apathy as his priority by taking PDF’s six-question survey as part of the Second Annual Community Choice Research Awards. Below, we interviewed him to find out why he thinks researchers should spend more time studying apathy. There’s still time for you too to submit. PDF is accepting survey submissions… read more Read More

Supporting Science with Science-Inspired Jewelry

“My collections are inspired by beauty and science, neuroscience to be exact,” says Emily Alice Ball. A jewelry designer from the UK, Emily Alice’s collections are uniquely named and categorized … according to science. For instance, there’s the oxytocin and the serotonin collection, and then there’s adrenalin. And most importantly during April … there’s dopamine. Dopamine is the neurotransmitter in the brain that helps with movement and coordination. It is also the one that is lost in Parkinson’s disease. Three years ago, Emily Alice, whose friend and customer lives with Parkinson’s disease, came to PDF with a creative idea for Parkinson’s Awareness… read more Read More

Gil & Kirk Agree, Palliative Care Should be
Priority for Researchers

Which question about living with Parkinson’s is your priority for scientists to answer? For PDF Research Advocates Kirk Hall of Denver, CO, and Gil Thelen of Tampa, FL, the answer is: understanding how palliative care can help people with PD. Gil and Kirk separately completed PDF’s six-question survey as part of the Second Annual Community Choice Research Awards. It turns out that they chose the same topic. We interviewed them to find out why studying palliative care is so important.

The Power of the Pen Against Parkinson’s

“Parkinson’s disease is a mimic. It is also a snowflake; no two incidents being identical in symptoms,” writes Gil Thelen, a PDF Research Advocate and longtime newspaper editor from Tampa, FL. With these words, printed last week as part of his Op-Ed, Mr. Thelen has proven how powerful a tool the pen can be in the fight against Parkinson’s.

Cindy Says, #MyPDPriority is Dystonia

Which question about Parkinson’s is your priority for scientists to answer? According to Cindy Bittker, M.S.W., a PDF Research Advocate from Hull, MA, the answer is: dystonia. As part of its Second Annual Community Choice Research Awards (open during April), PDF is profiling members of the PD community who have taken our survey to find out the priorities they suggest for scientists. The survey — open to people with PD and care partners until Thursday, April 30 — asks what is most important for researchers to study regarding specific aspects of the disease, including its symptoms, day-to-day management and treatment. Later in… read more Read More

Kid-Designed Parkinson’s T-Shirt Contest A Work of Art For All

Everyone is ready to wear their heart on their sleeve for Parkinson’s after the Kids Only PD Awareness T-Shirt Design Contest! The contest illustrated how everyone, no matter their age, can help to make a difference in the fight against Parkinson’s. Just last week, the public voted for, “Together we can fight Parkinson’s,” a design created by 7-year-old Mabel Johnson, from among six finalists (see all the designs in the slideshow below), to be featured on the official 2015 PD Awareness T-Shirt. Mabel’s design was among nearly 40 endearing designs submitted by children ages five to 15. The designs, most… read more Read More