Blog Archives: Getting Involved

Shake, Rattle & Roll for PD: Q&A with A.C. Woolnough

A.C. Woolnough doesn’t let Parkinson’s disease get him down. He’s been actively involved in the fight against PD since his diagnosis in 2014, in part by volunteering with the Parkinson’s Disease Foundation (PDF). He is not only a member of the PDF People with Parkinson’s Advisory Council, and one of our Research Advocates, he is also a member of our Creativity and PD Project. Now he’s adding another volunteer role to his long PD volunteer resume — fundraiser. He is putting his passion for golf to work as a PDF Champion next Saturday, September 5, when he will host Shake, Rattle & Roll in Sandpoint,… read more Read More

Transformation, Creation & Life with Parkinson’s: Q&A with John Creveling

How did you spend your summer vacation? John Creveling, a PDF Research Advocate from Philadelphia, PA, spent it sharing his story with the Parkinson’s disease community. At the beginning of the month, John’s story was featured in Neurology Now, a magazine widely featured in doctors’ offices and read by people living with Parkinson’s disease and other neurological diseases.  Just a few days later, the Parkinson’s community voted for John’s photograph, Transformation, to be featured on the cover of PDF’s 2016 Creativity and Parkinson’s calendar. We sat down with John to hear about his own transformation into an advocate for Parkinson’s disease — one… read more Read More

Advocating for Equality in Science on Women’s Equality Day

A few months ago, the National Institutes of Health — the government institute that funds $26.4 billion in biomedical research each year — called for equal representation for females in scientific research studies … female mice, that is. Today, as we mark Women’s Equality Day, equality for mice (and human women) in scientific research might not be the first issue that springs to mind. But it is an important one. Why? Because when scientists test new therapies for diseases such as Parkinson’s, there are several steps to make sure they are safe and effective in humans. And experiments in mice… read more Read More

Is a PD Support Group Right For You?

Would you like to share resources and tips for living better with Parkinson’s? If so, joining a support group is one option to consider. For some people with Parkinson’s, support groups can be wonderful sources of information and social and emotional support. You may be wondering how to find a support group or, if there isn’t one nearby, how to start one yourself. Our team at PDF is here to help.

What about the Symptoms We Can’t See? Diane & Scientists Discuss ‘Invisible Faces of PD’

Do you find that your ‘invisible’ symptoms — the ones that people can’t see like sleep issues or dizziness — are the ones that bother you the most? Many people with PD say this is the case, but just 15 years ago, this wasn’t widely known. The good news is that this past April, a group of scientists got together to speak about these symptoms at a meeting, “Non-motor Symptoms: Unraveling the Invisible Faces of Parkinson’s Disease,” hosted by the New York Academy of Sciences (NYAS) in New York, NY. The better news? Diane Cook, a person with PD, and… read more Read More

From A.C.: Thanking Dad by Giving Back

As Father’s Day comes closer, I have been reflecting on what my Dad gave to me. A US Navy veteran, my Dad was proud of his 37-year career. He served his country as a seaman in World War II and later as an officer. That’s one reason why his diagnosis of Parkinson’s disease – an incurable, chronic and progressive disease – hit him so hard. Although he’s gone, one of the many values he taught me was to be a part of something bigger than self … to serve others … to give back.