Blog Archives: Getting Involved

Visiting Nurse Notes: Scholar & Student Partner with Community Health Workers in Nicaragua

How would you help your patients with PD if levodopa were unavailable? It is a difficult question. But it is one that Elizabeth K. Keech, Ph.D., R.N., an adjunct clinical assistant professor from Villanova University College of Nursing and a scholar with The Edmond J. Safra Visiting Nurse Faculty Program at PDF, sought to answer along with one of her students, Elizabeth Yates, B.S.N., R.N. The EJS-VNF Program at PDF trains nursing faculty in Parkinson’s disease, so that they can prepare the next generation of nurses — their students — to care for the growing number of people living with… read more Read More

Celebrating Spring to Benefit Parkinson’s, Boston Edition: A Q&A with Rehana Ashraf

Rehana Ashraf and her partners-in-planning Kate Evans and Anne Greene, are focused on getting young Bostonians involved in the Parkinson’s cause. In fact, in part to honor their own loved ones affected by the disease, next month they are hosting their fourth annual Celebrate Spring Boston to benefit PDF on Friday, April 24, building on previous years’ successes. The festive evening features cocktails, hors d’oeuvres and dancing. Over the past few years, the women have used PDF’s New York event of the same name as a blueprint for success, raising more than $130,000. In the interview below, find out why… read more Read More

Teaming Up to Fund Research: Q&A with Alan Zimmerman

“Can’t” isn’t part of Alan Zimmerman’s vocabulary. That’s why he is on a mission to end Parkinson’s disease, along with an enthusiastic team.  This month, he and fellow members of the PDF People with Parkinson’s Advisory Council (PPAC) are launching a special team fundraiser to support PDF research programs. Their goal? Raise $25,000 to support PDF’s Community Choice Research Awards, which support research into unmet needs in PD that are identified by the community. Hear from Alan, known by friends as “Z man,” about why he’s excited to work with his PPAC team to make a difference.

The Power of Self in Parkinson’s: Q&A with Diane Cook

Are people newly diagnosed with Parkinson’s finding the right support? Many people, when first diagnosed with Parkinson’s, are given little guidance on facing life with a chronic progressive disease. And that diagnosis is life changing — it entails changes to health, relationships, family life, employment and finances. Diane Cook, a member of the PDF People with Parkinson’s Advisory Council, is passionate about changing this. She wants to support the newly diagnosed so they can begin their PD journey on the right foot. Over the past few years, she has developed a program called PD SELF. It provides tools and information… read more Read More

Happy Hour to Help PD Research: Q&A with Stephanie Goldman-Pittel

What’s the recipe for success when it comes to fundraising for PD? For PDF Board Member Stephanie Goldman-Pittel and friends Amy Sole and Doug Stern, it’s simple: turn happy hour into helping hour. In 2014, the trio created a local PDF Helping Hours, inviting friends and family for cocktails at Harvest Bistro in Closter, NJ, to raise funds for PDF. Over the years, their thematic events — tequila and tapas in their first year, and a vodka tasting in year two — have raised more than $47,000 for PDF research programs. The group will gather on Thursday, March 3, for this… read more Read More

Managing Meds in PD: Visiting Nurse Notes with Dr. Ju Young Shin

Are there steps a person with Parkinson’s can take to live better with the disease? Yes, according to Ju Young Shin, Ph.D., A.P.R.N., A.N.P-C., an alumni of The Edmond J. Safra Visiting Nurse Faculty Program (EJS-VNF) at the Parkinson’s Disease Foundation (PDF). She has spent her career answering that question to help her patients to live better. After undergoing the EJS-VNF program at PDF in 2013, she turned her attention to Parkinson’s disease (PD). Now she’s conducting research into helping people with PD take charge, and live better through simple everyday means, like managing medications. Here’s our interview with her.