Blog Archives: Getting Involved

Meet Lea, Age 13, Designer of the 2016 Parkinson’s Awareness T-Shirt

Lea Dempsey, 13, of Princeton, NJ, has a knack for drawing, which she credits to her late grandfather, an avid painter who lived with Parkinson’s disease for more than a decade. When the seventh grader stumbled upon PDF’s Kids Only T-Shirt Design Contest a few months back, she knew it was the perfect way to honor his memory.  Earlier this month, the public voted her design, “Join the Team Ending Parkinson’s,” to be printed on PDF’s 2016 Awareness T-shirts that will be worn by hundreds of people across the country. What’s the story behind Lea’s design? PDF recently interviewed Lea and… read more Read More

A Half Marathon to Honor Her Grandfather: Q&A with Alexandra Archuleta

How can college students help PDF to end Parkinson’s?  For Alexandra Archuleta, the answer is simple: lace up her sneakers and run the Oakland Running Festival Half Marathon in Oakland, CA. This Sunday, March 20, she’s taking on the race as a PDF Champion to honor her grandfather. With friends and family cheering her on, she’s already raised $1,000 for PDF (double the amount she initially hoped to raise). Hear from Alexandra about why it was important to her to get involved and put her passion for running to work for Parkinson’s disease.

Visiting Nurse Notes: Scholar & Student Partner with Community Health Workers in Nicaragua

How would you help your patients with PD if levodopa were unavailable? It is a difficult question. But it is one that Elizabeth K. Keech, Ph.D., R.N., an adjunct clinical assistant professor from Villanova University College of Nursing and a scholar with The Edmond J. Safra Visiting Nurse Faculty Program at PDF, sought to answer along with one of her students, Elizabeth Yates, B.S.N., R.N. The EJS-VNF Program at PDF trains nursing faculty in Parkinson’s disease, so that they can prepare the next generation of nurses — their students — to care for the growing number of people living with… read more Read More

Celebrating Spring to Benefit Parkinson’s, Boston Edition: A Q&A with Rehana Ashraf

Rehana Ashraf and her partners-in-planning Kate Evans and Anne Greene, are focused on getting young Bostonians involved in the Parkinson’s cause. In fact, in part to honor their own loved ones affected by the disease, next month they are hosting their fourth annual Celebrate Spring Boston to benefit PDF on Friday, April 24, building on previous years’ successes. The festive evening features cocktails, hors d’oeuvres and dancing. Over the past few years, the women have used PDF’s New York event of the same name as a blueprint for success, raising more than $130,000. In the interview below, find out why… read more Read More

Teaming Up to Fund Research: Q&A with Alan Zimmerman

“Can’t” isn’t part of Alan Zimmerman’s vocabulary. That’s why he is on a mission to end Parkinson’s disease, along with an enthusiastic team.  This month, he and fellow members of the PDF People with Parkinson’s Advisory Council (PPAC) are launching a special team fundraiser to support PDF research programs. Their goal? Raise $25,000 to support PDF’s Community Choice Research Awards, which support research into unmet needs in PD that are identified by the community. Hear from Alan, known by friends as “Z man,” about why he’s excited to work with his PPAC team to make a difference.

The Power of Self in Parkinson’s: Q&A with Diane Cook

Are people newly diagnosed with Parkinson’s finding the right support? Many people, when first diagnosed with Parkinson’s, are given little guidance on facing life with a chronic progressive disease. And that diagnosis is life changing — it entails changes to health, relationships, family life, employment and finances. Diane Cook, a member of the PDF People with Parkinson’s Advisory Council, is passionate about changing this. She wants to support the newly diagnosed so they can begin their PD journey on the right foot. Over the past few years, she has developed a program called PD SELF. It provides tools and information… read more Read More