Blog Archives: Getting Involved

Two New Drugs for PD: A Caregiver & Advocate Speaks Out

Last month, it was announced that two new drugs were approved by the US Food and Drug Administration, for treatment of Parkinson’s disease (PD). Both drugs, Rytary™ and Duopa™, are updates to carbidopa/levodopa. They offer, respectively, a newer formulation and delivery method to reduce off-times for those with PD. In this Q&A, PDF speaks with Myra Hirschhorn, one of our trained Research Advocates, to understand the community reaction to the approvals. As part of the Parkinson’s Advocates in Research program, Myra has been trained in the drug development process, and educates her community about research.

Pancakes for PD: Q&A with Students from Liberty College of Osteopathic Medicine

On February 2, a group of future osteopathic doctors at the Liberty University College of Osteopathic Medicine (LUCOM) hosted Pancakes for Parkinson’s, a breakfast to raise awareness of PD and funds for PDF. The students, who make up the university’s chapter of the national Student Osteopathic Medical Association, welcomed 100 guests and raised $400. In this Q&A, Pranamya Mahankali, chapter leader, shares why the students got involved as PDF Champions, plus we link to a local news cast featuring the students’ efforts.

Science Summary from SfN 2014

When 30,000 neuroscientists gather together to talk about the brain, what can we learn about Parkinson’s disease? Our team found out at the latest meeting of the Society for Neuroscience (SfN) meeting in Washington, DC, which took place in November. At the meeting, PDF’s James Beck, Ph.D., VP for Scientific Affairs, and Beth Vernaleo, Ph.D., Senior Manager, Research Programs, were joined by PDF Research Advocates Todd Hebb and Paul Zimmet, D.D.S., both of whom live with PD. (Drs. Zimmet and Vernaleo are pictured inset).

Supporting Dad No Matter What: Q&A with Greg and Ann Marie Hardoby

How do you show someone with Parkinson’s that you care? Family and friends often rally around a loved one with PD, showing their support in a variety of ways. During November, which is National Family Caregivers Month, PDF recognizes, “All the Ways Care Partners Care.” Our campaign highlights four diverse stories, including the Hardoby family of Rahway, NJ. Greg Hardoby lives with PD and works with PDF as a volunteer Research Advocate and Champion. Here, he and his daughter Ann Marie discuss how their family copes with PD.

Patient and Caregiver: Side-by-Side Perspectives from Marc and Elaine

What is the relationship between a person with Parkinson’s disease and his or her caregiver? In a special post written during National Family Caregivers Month, we hear perspectives from Marc Sherman, J.D., a person with PD and Elaine Casavant, R.N., a care partner. Both are members of PDF’s People with Parkinson’s Advisory Council.

Caregiver-Doctor-Patient: Q&A with Dr. Maria De Leon

How do you show someone with Parkinson’s that you care? Family and friends often rally around a loved one, showing their support in a variety of ways. During November, which is recognized as National Family Caregivers Month, PDF recognizes, “All the Ways Care Partners Care.” Our campaign highlights four diverse stories, including the story of Maria De Leon, M.D., of Nacogdoches, TX, a member of PDF’s People with Parkinson’s Advisory Council and a PDF Research Advocate.