Blog Archives: Getting Involved

Improving Palliative Care Throughout the PD Journey: Q&A with Kirk Hall and Gil Thelen

As part of our scientific funding, the Parkinson’s Disease Foundation (PDF) is investing more than $90,000 in Conference Awards in 2015. Through this program, we fund gatherings of experts to address unsolved questions in Parkinson’s, such as, “how can we improve palliative care in Parkinson’s at every stage of the disease?” In October, we hosted a conference to answer this question. Led by Benzi Kluger, M.D. of the University of Colorado, it included a global group of scientists, doctors, health professionals and PDF Research Advocates Kirk Hall of Denver, CO, and Gil Thelen of Tampa, FL. Below, Kirk and Gil report… read more Read More

Four Ways People with PD Are Guiding Our Work to End PD

You may have noticed that PDF has opened up applications for individuals interested in joining our People with Parkinson’s Advisory Council. Our members, all people living with PD and care partners, are driving PDF’s goal of ending Parkinson’s disease. Each member has made unique contributions to PDF’s work to mobilize leaders in science, health care and the patient community to work together toward a cure. How do they do it? Here are four ways:

Triathlon for Dad: A Q&A with Mark Macenas

What sparks a PDF Champion’s desire to complete a triathlon for Parkinson’s research? For Mark Macenas of Durham, NC, who completed the Wilmington Sprint Triathlon on September 19, it was watching his dad’s fight with Parkinson’s disease. And for this avid athlete, the 1,500-meter swim, 12-mile bike ride and 5K run weren’t challenging enough. Mark, a firefighter and EMT of more than 14 years, also wore his full firefighting gear (decked out in PDF stickers) for a portion of the race. Mark has since raised more than $2,200 for PDF.

PDF Reconoce el Mes Nacional de la Hispanidad (PDF Recognizes National Hispanic Heritage Month)

La herencia y cultura Hispana se celebra durante el Mes de la Hispanidad (15 de Septiembre al 15 de Octubre). Aquí en PDF, en nuestra misión de servir al millón de estadounidenses que viven con la Enfermedad de Parkinson, reconocemos la evolución de la comunidad de habla hispana en los EE.UU., ofreciendo materiales y recursos educativos en Español. Estas publicaciones son una recopilación de preguntas frecuentes, y una serie de hojas informativas sobre temas relacionados con el Parkinson.

Let’s Make Grandparents Day Special

Don’t grandparents have a way of always making us feel special? Whether it is supporting us at school, cheering us from the sidelines or making our favorite home-cooked meal, they often know just the right thing to say or do. When a grandparent is living with Parkinson’s disease, how can we make them feel special? In honor of national Grandparents Day this Sunday, September 13, we invite you to join the Parkinson’s Disease Foundation in doing just that. It can be as simple as sharing a smile, spending a day together, sending an eCard or raising funds for Parkinson’s disease research.