Blog Archives: Advocacy

A 21st Century Approach to Curing Parkinson’s

Earlier this month, Congress approved, and President Obama signed, the Cures Act, formally known as the 21st Century Cures Act. Along with scores of other voluntary health and research organizations, the Parkinson’s Disease Foundation (PDF) applauds this move as one that will confront diseases head-on and accelerate research seeking cures. In this decisive, bipartisan move — too rare in these politically-divided days — the federal government has signaled its confidence that science can help us deliver on the elusive dream of drawing the curtain on diseases including Parkinson’s.

You Can Make the Cure a Reality

Who drives our work to end Parkinson’s disease? You do. That’s why PDF puts you front and center. It is why we are mobilizing a network of patient leaders, over 300 strong, who are changing lives and accelerating our work to end Parkinson’s. But we need your help to grow their numbers. Support the PDF patient leadership team today. When you do, donors from the PDF Leadership Circle will match every donation up to $500,000!

Care Partners: Make Your Vote Count

By Alan and Cherry Zimmerman Recently, we were asked through the PDF Community Choice Research awards to choose our top priority for Parkinson’s research. We chose caregiver needs. (See our photo at left, or a larger version here.) As you may know, PDF spends $5 million a year on research to solve, treat and end Parkinson’s disease. Through the Community Choice Research Awards, PDF asks the community to help identify other unmet needs not being addressed by research.

Honoring Veterans Helping to #EndParkinsons

This Veterans Day, the Parkinson’s Disease Foundation (PDF) honors veterans who have served our country, including those touched by Parkinson’s disease. In particular, we recognize the veterans on the PDF team who continue to serve the community by helping us to end Parkinson’s disease. Here are a few of their stories.

I Voted: Stories from the Community Choice Research Awards

“I used to be a ‘do-er.’ Now I’m a ‘half do-er.’” These are the words Kris Gjerde, a PDF Advocate from St. Paul, MN, used to explain why she voted for apathy in the Third PDF Community Choice Research Awards survey.  She wants solutions so she can keep doing the things she loves. Since the survey launched earlier this month, she and more than 500 people with Parkinson’s and care partners have voted for their research priorities, ranging from sleep issues and anxiety, to gait difficulties and dyskinesia. Why is Kris’ feedback — and yours — so important?

PDF Team Posters at the 4th World Parkinson Congress

At PDF, our strategy for ending Parkinson’s is to build a team of leaders in research, health care and the patient community and mobilize them to work together toward the cure. That’s one reason we were excited to see 100 members of the PDF team together at the 4th World Parkinson Congress (WPC) in Portland, OR. One place our team showed their collaborative spirit was in the poster presentations. Throughout the week, the PDF team presented posters sharing advancements in PD research and care. Many PDF posters, several of which are highlighted below, were authored by teams comprising PD professionals (scientists, doctors, nurses), staff and PDF patient… read more Read More