Blog Archives: Advocacy

LIVE from the 4th World Parkinson Congress (Day 2)

What happens when thousands of people touched by Parkinson’s disease get together? That’s exactly what’s happening at the 4th World Parkinson Congress (WPC) in Portland, OR, where a record 4,500 people PD, care partners, researchers, and health professionals from around the globe have gathered to advance treatments and a cure. The answer? A lot happens. The WPC is chock full of educational seminars, scientific sessions, roundtables, poster presentations, music performances, exercise, yoga and more. The hardest part is choosing where to go. Here’s an update on what the PDF team saw and did on day 2 (Wednesday).

LIVE from the 4th World Parkinson Congress (Day 1, Part 2)

Awe-inspiring. It’s a word Dan Novak, Ph.D., Chair of the PDF People with Parkinson’s Advisory Council, used recently when describing the World Parkinson Congress (WPC). Last night in Portland, OR, it proved true. It captured the feeling of walking into a room with 4,000 people (people living with Parkinson’s, care partners, researchers and health professionals) who all share one goal — a world without Parkinson’s. As part of this week’s WPC reports, see our summary of last night’s awe-inspiring Opening Ceremony.

LIVE from the 4th World Parkinson Congress (Day 1, Part I)

This week, the Parkinson’s Disease Foundation is on site at the 4th World Parkinson Congress (WPC) in Portland, OR. Our team of 100 staff, patient advocates and PDF-supported researchers and health professionals joins more than 4,000 delegates from around the globe who are all working toward the same goal: a world without Parkinson’s. Each day, we’ll bring reports to you. Yesterday (Tuesday) was a pre-congress day before the formal program had begun, but it kicked off in full force! Here is what our team saw and heard.

PD SELF: Can Self-Efficacy Improve Life for the Newly Diagnosed?

By Gil Thelen How about that retired Philadelphia-area organizational development consultant? After his Parkinson’s disease (PD) diagnosis, he surprisingly (to himself) found the capacity to become an accomplished folk painter and soon-to-be-published poet. Or the retired Richmond, VA, dentist who raises buckets of money for research programs of the Parkinson’s Disease Foundation (PDF)? Or the light-up-the-room, former pediatric office manager from Denver, CO? Not to mention the research coordinator named Chi Chi. And finally, the wisecracking, not-so-retired former newspaper editor and college professor from Tampa, FL (me). That’s a taste of the 20 people with PD and professionals who trained last month as… read more Read More

PDF Volunteers Reflect on Ali’s Impact on Parkinson’s Cause

The Parkinson’s Disease Foundation (PDF) and members of the Parkinson’s community continue to mourn the loss of Muhammad Ali and celebrate his efforts to raise awareness of the disease. In the days since his passing, many people in the community have shared reflections on his role as the first celebrity to live publicly with Parkinson’s. Below, hear from PDF volunteer leaders — members of our People with Parkinson’s Advisory Council —  as they share their reactions and insights. (Credit: Kevin Mazur/ Muhammad Ali at PDF Gala, June 1, 1995/Getty Images)

Thanking Nurses During National Nurses Week

Who’s on your Parkinson’s team? For many people with Parkinson’s, nurses are critical members throughout their journey with the disease. In fact, nurses are often the first point of contact for many people with Parkinson’s disease upon receiving a diagnosis. In recent years, PDF has been working alongside nursing leaders to raise awareness of the ways in which nurses improve the lives of people with Parkinson’s and to provide those nurses with the resources they need.  As we are in the midst of National Nurses Week (Friday, May 6 through Thursday, May 12), we want to thank a few nurses… read more Read More