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From Robin: The Journey Begins at WPC 2013

Excited. Filled with Anticipation. Overwhelmed, in a good way. And to think it all started close to four months ago, in June. That is when my husband John and I decided to attend the World Parkinson’s Congress 2013. Given the fact that it only happens once every three years, it’s the single largest worldwide gathering of all stakeholders in the Parkinson’s field, and we missed it the last go around — we weren’t going to let that happen again.

From Linda: My First Hours in Montreal

From Linda Morgan, M.B.A., R.Ph., member People with Parkinson’s Advisory Council I arrived early in Montreal for the 3rd World Parkinson Congress, which will officially start on Tuesday. I came in early to be part of an ‘historic’ dinner and meeting between researchers from the Parkinson Study Group (PSG) and those of us involved with Parkinson’s Advocates in Research (PAIR).

Expression vs. Insensitivity: A Message to Kanye West from a Person with Parkinson’s

From Tom Palizzi Chair, PDF People with Parkinson’s Advisory Council Kanye West is without question a richly talented and multifaceted artist. With utmost respect for freedom of expression and the inherent controversial nature of art in general, there is, however, a fine line between expression and insensitivity. “On Sight,” the opening track on Mr. West’s new album Yeezus, includes the lyrics:

From PPAC: Parkinson’s Isn’t Newsworthy … Until It Personally Touches You

By Peggy Willocks, member, PDF People with Parkinson’s Advisory Council April is Parkinson’s Awareness Month. And it won’t be newsworthy that I came all the way from Tennessee to New York to participate in this past Saturday’s Parkinson’s Unity Walk, where about 10,000 people with Parkinson’s, friends and family “walked” through Central Park as a symbolic gesture to raise funding for research. As a member of the Parkinson’s Disease Foundation’s (PDF) Advisory Council, it isn’t newsworthy that I am also here as a voice of the patient in helping to have better and faster approval of therapies for the debilitating… read more Read More