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From Jay & Marilyn: It Takes a Team & We Need You!

My wife, Marilyn, and I are constantly reminded of the critical role that health professionals play in helping us live our lives to the fullest with Parkinson’s disease. That’s why we work with PDF. Through innovative clinical and online trainings, PDF partners with health leaders to transform PD care. But we need your support to train even more health leaders.

Parkinson’s Doesn’t Discriminate

By Dan Novak, Ph.D. Parkinson’s disease doesn’t discriminate. It affects the young sports heroes who are bigger than life. It affects the old as they reflect on a life well lived. And me — I got PD at 52. I don’t know why I got it. But I know that we need answers. Medications help with stiffness, slowness and tremor. But they don’t stop the disease. With your help, we can do better.

PD SELF: Can Self-Efficacy Improve Life for the Newly Diagnosed?

By Gil Thelen How about that retired Philadelphia-area organizational development consultant? After his Parkinson’s disease (PD) diagnosis, he surprisingly (to himself) found the capacity to become an accomplished folk painter and soon-to-be-published poet. Or the retired Richmond, VA, dentist who raises buckets of money for research programs of the Parkinson’s Disease Foundation (PDF)? Or the light-up-the-room, former pediatric office manager from Denver, CO? Not to mention the research coordinator named Chi Chi. And finally, the wisecracking, not-so-retired former newspaper editor and college professor from Tampa, FL (me). That’s a taste of the 20 people with PD and professionals who trained last month as… read more Read More

What My Dad Taught Me About Life with Parkinson’s

by A.C. Woolnough As Father’s Day approaches, I reflect on the values my late Dad (at left) instilled in me. As a US Navy Veteran, his diagnosis of Parkinson’s hit him hard. Still, he constantly reminded me to serve others … to be a part of something bigger than self. When I too was diagnosed with Parkinson’s two years ago, it was my Dad, although long gone by then, who had the biggest influence on me. Because of him, I view Parkinson’s not only as a challenge, but as a way of giving back. Today, I ask you to join me in… read more Read More

From Kirk: Will You 2x Your Donation to PDF?

I’m a person living with Parkinson’s disease. Because of investment from the Parkinson’s Disease Foundation, I am also a trained Research Advocate and a member of the team ending PD. But we need your help. After my diagnosis in 2008, I wasn’t sure how to make a difference. But by training with PDF’s Parkinson’s Advocates in Research (PAIR) program, I realized that patient advocates have a critical role to play. Now I’m working on the front lines with PDF-funded researchers to solve, treat and end PD. But we need your donation to help our team, including Research Advocates like me, meet… read more Read More