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PD SELF: Can Self-Efficacy Improve Life for the Newly Diagnosed?

By Gil Thelen How about that retired Philadelphia-area organizational development consultant? After his Parkinson’s disease (PD) diagnosis, he surprisingly (to himself) found the capacity to become an accomplished folk painter and soon-to-be-published poet. Or the retired Richmond, VA, dentist who raises buckets of money for research programs of the Parkinson’s Disease Foundation (PDF)? Or the light-up-the-room, former pediatric office manager from Denver, CO? Not to mention the research coordinator named Chi Chi. And finally, the wisecracking, not-so-retired former newspaper editor and college professor from Tampa, FL (me). That’s a taste of the 20 people with PD and professionals who trained last month as… read more Read More

What My Dad Taught Me About Life with Parkinson’s

by A.C. Woolnough As Father’s Day approaches, I reflect on the values my late Dad (at left) instilled in me. As a US Navy Veteran, his diagnosis of Parkinson’s hit him hard. Still, he constantly reminded me to serve others … to be a part of something bigger than self. When I too was diagnosed with Parkinson’s two years ago, it was my Dad, although long gone by then, who had the biggest influence on me. Because of him, I view Parkinson’s not only as a challenge, but as a way of giving back. Today, I ask you to join me in… read more Read More

From Kirk: Will You 2x Your Donation to PDF?

I’m a person living with Parkinson’s disease. Because of investment from the Parkinson’s Disease Foundation, I am also a trained Research Advocate and a member of the team ending PD. But we need your help. After my diagnosis in 2008, I wasn’t sure how to make a difference. But by training with PDF’s Parkinson’s Advocates in Research (PAIR) program, I realized that patient advocates have a critical role to play. Now I’m working on the front lines with PDF-funded researchers to solve, treat and end PD. But we need your donation to help our team, including Research Advocates like me, meet… read more Read More

From Gwyn: 2x Your Donation to the Nurses Ending Parkinson’s Disease

I’m a nurse specializing in Parkinson’s disease. Because of investment from the Parkinson’s Disease Foundation, I’m helping to expand the team of nurses who can treat and end PD. And we need your help! A few years ago, as a nursing educator, I was troubled to see that we were leaving the next generation of nurses unprepared to care for people with Parkinson’s disease — in fact, the textbook included only one sentence on PD! But with PDF’s $600,000 investment in health care leaders — including training to prepare the next generation of nurses — this is changing.

From Rachel: Let’s Make #GivingTuesday about PDF

By PDF Champion Rachel Isenberg Today is #GivingTuesday, a national day of giving that challenges the public to give back to a charity of choice. This #GivingTuesday, I’m asking you to help me raise awareness of PDF’s work to end Parkinson’s. I ask for your help because PDF’s work is close to my heart: my mother lives with Parkinson’s and my late grandfather also lived with the disease. For the past six years, I have completed a “summer challenge” to raise funds and awareness for PDF. I have scaled mountains, biked across states, and kayaked and ran in order to… read more Read More

Improving Palliative Care Throughout the PD Journey: Q&A with Kirk Hall and Gil Thelen

As part of our scientific funding, the Parkinson’s Disease Foundation (PDF) is investing more than $90,000 in Conference Awards in 2015. Through this program, we fund gatherings of experts to address unsolved questions in Parkinson’s, such as, “how can we improve palliative care in Parkinson’s at every stage of the disease?” In October, we hosted a conference to answer this question. Led by Benzi Kluger, M.D. of the University of Colorado, it included a global group of scientists, doctors, health professionals and PDF Research Advocates Kirk Hall of Denver, CO, and Gil Thelen of Tampa, FL. Below, Kirk and Gil report… read more Read More