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Just Around the Corner to the Light of Day Concerts for PD

This past weekend, the Light of Day Foundation kicked off its Winterfest concerts in Asbury Park, NJ, with proceeds benefitting Parkinson’s disease research, including the programs of PDF. Are you near New York, New Jersey or Philadelphia, PA? There’s still time to enjoy great music at the Winterfest (the concerts run until Monday, January 18), while supporting Parkinson’s research. The concerts are in the 20th year, thanks to PDF’s longtime friend Bob Benjamin, who founded Light of Day back in 1996. Back then, shortly after Bob’s own diagnosis of young-onset PD, he threw a 40th birthday concert with friends and… read more Read More

Aspirin for Parkinson’s: What Does It Mean?

Can an aspirin a day treat Parkinson’s disease (PD)? Not exactly, but the idea made headlines a few weeks ago, after scientists discovered that a key ingredient of aspirin might have potential to block the loss of brain cells in neurological diseases like PD and Alzheimer’s. As with every science headline, PDF asks, “what does it mean for people with PD?” In this case, we asked Michael Schwarzschild, M.D., Ph.D., of MassGeneral Institute of Neurodegenerative Disease, a well-known PD scientist who has also studied aspirin and ibuprofen in relation to PD. Here are his insights.

Employment with PD: Working it Out

“Will Parkinson’s disease impact my career? Will I still be able to work?” After a Parkinson’s disease diagnosis, these are common yet difficult questions as individuals wonder how symptoms will progressively impact the future. Recently, well-known public figures, including professional athletes and elected officials, have put the issue of employment with PD back in the headlines. Last month, former Major League Baseball player Kirk Gibson, who announced his PD diagnosis just a few months ago, was back in the headlines as he interviewed for a new position with the Los Angeles Dodgers. Several news articles questioned whether his Parkinson’s disease… read more Read More

Four Ways People with PD Are Guiding Our Work to End PD

You may have noticed that PDF has opened up applications for individuals interested in joining our People with Parkinson’s Advisory Council. Our members, all people living with PD and care partners, are driving PDF’s goal of ending Parkinson’s disease. Each member has made unique contributions to PDF’s work to mobilize leaders in science, health care and the patient community to work together toward a cure. How do they do it? Here are four ways:

The Myth of Palliative Care

November is recognized as National Hospice and Palliative Care Month. Is there a difference between the two? Yes — palliative care is specialized medical care that focuses on providing, “relief from the symptoms of stress of a serious illness,” as PDF Research Advocate Kirk Hall explained in an earlier blog.  Although often mistaken for end-of-life care, the definition of palliative care is actually very broad. On the other hand, hospice care is designed to improve quality of life through pain relief and symptom management for individuals facing end-of-life. It is important to understand the difference between the two types of care, and how both can benefit… read more Read More

Improving Hospital Visits with PD: Visiting Nurse Notes with Dr. Gerry Altmiller

How can we improve hospital care for people with Parkinson’s disease (PD)? When people with Parkinson’s visit the hospital (usually for a non PD-related health condition), they can experience longer stays and more often need rehabilitation than those without the disease. One challenge facing the health professionals responsible for care is the need for updated information on Parkinson’s disease. Luckily, Gerry Altmiller, Ed.D., A.P.R.N., AC.N.S.-B.C., an alumni of The Edmond J. Safra Visiting Nurse Faculty Program (EJS-VNF) at the Parkinson’s Disease Foundation (PDF), is helping to make that happen.