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May We Have This Dance?

When was the last time you danced? In recent years, the Parkinson’s Disease Foundation (PDF) has seen growing popularity and availability of dance programs designed specifically for people with Parkinson’s disease. In fact, the trend was discussed a few weeks ago in a National Public Radio segment. Have you or a patient or a loved one tried dance classes for PD? If not, what should you know and how can you find a class? Let’s explore the answers. And don’t miss our video, “A Celebration of Movement,” which may leave you inspired to get up and dance.

PAIRed Research Into Mood Disorders in PD: Q&A with Dr. Stark-Inbar

Did you know that anxiety and depression are common in Parkinson’s disease (PD)? Both of these fall under the umbrella of mood disorders. But despite being common in PD, they often go undiagnosed (or incorrectly diagnosed) and under-treated. By combining forces, a scientist-patient advocate team involving Alit Stark-Inbar, Ph.D., at UC Berkeley and Ronnie Wanetick, a PDF Research Advocate, is finding solutions. The two received a PDF PAIR Leadership Award to study EMOTE, an iPad app that can help to monitor depression and anxiety throughout the day, and even offers games to help ease symptoms. While the app is still… read more Read More

The Power of Self in Parkinson’s: Q&A with Diane Cook

Are people newly diagnosed with Parkinson’s finding the right support? Many people, when first diagnosed with Parkinson’s, are given little guidance on facing life with a chronic progressive disease. And that diagnosis is life changing — it entails changes to health, relationships, family life, employment and finances. Diane Cook, a member of the PDF People with Parkinson’s Advisory Council, is passionate about changing this. She wants to support the newly diagnosed so they can begin their PD journey on the right foot. Over the past few years, she has developed a program called PD SELF. It provides tools and information… read more Read More

Happy Hour to Help PD Research: Q&A with Stephanie Goldman-Pittel

What’s the recipe for success when it comes to fundraising for PD? For PDF Board Member Stephanie Goldman-Pittel and friends Amy Sole and Doug Stern, it’s simple: turn happy hour into helping hour. In 2014, the trio created a local PDF Helping Hours, inviting friends and family for cocktails at Harvest Bistro in Closter, NJ, to raise funds for PDF. Over the years, their thematic events — tequila and tapas in their first year, and a vodka tasting in year two — have raised more than $47,000 for PDF research programs. The group will gather on Thursday, March 3, for this… read more Read More

Managing Meds in PD: Visiting Nurse Notes with Dr. Ju Young Shin

Are there steps a person with Parkinson’s can take to live better with the disease? Yes, according to Ju Young Shin, Ph.D., A.P.R.N., A.N.P-C., an alumni of The Edmond J. Safra Visiting Nurse Faculty Program (EJS-VNF) at the Parkinson’s Disease Foundation (PDF). She has spent her career answering that question to help her patients to live better. After undergoing the EJS-VNF program at PDF in 2013, she turned her attention to Parkinson’s disease (PD). Now she’s conducting research into helping people with PD take charge, and live better through simple everyday means, like managing medications. Here’s our interview with her.

Weighing in on Weight Management in PD

Have you noticed any changes in your weight due to Parkinson’s disease? You are not alone. It is critical for all of us to maintain a healthy weight. For people with Parkinson’s disease, this might be more difficult to do because of PD symptoms or medications. As January is National Healthy Weight Awareness Month, our team wanted to bring awareness to the issue of weight management in Parkinson’s disease. Here are a few little-known facts: