By Alan and Cherry Zimmerman Recently, we were asked through the PDF Community Choice Research awards to choose our top priority for Parkinson’s research. We chose caregiver needs. (See our photo at left, or a larger version here.) As you may know, PDF spends $5 million a year on research to solve, treat and end Parkinson’s disease. Through the Community Choice Research Awards, PDF asks the community to help identify other unmet needs not being addressed by research.
This Veterans Day, the Parkinson’s Disease Foundation (PDF) honors veterans who have served our country, including those touched by Parkinson’s disease. In particular, we recognize the veterans on the PDF team who continue to serve the community by helping us to end Parkinson’s disease. Here are a few of their stories.
“I used to be a ‘do-er.’ Now I’m a ‘half do-er.’” These are the words Kris Gjerde, a PDF Advocate from St. Paul, MN, used to explain why she voted for apathy in the Third PDF Community Choice Research Awards survey. She wants solutions so she can keep doing the things she loves. Since the survey launched earlier this month, she and more than 500 people with Parkinson’s and care partners have voted for their research priorities, ranging from sleep issues and anxiety, to gait difficulties and dyskinesia. Why is Kris’ feedback — and yours — so important?
At PDF, our strategy for ending Parkinson’s is to build a team of leaders in research, health care and the patient community and mobilize them to work together toward the cure. That’s one reason we were excited to see 100 members of the PDF team together at the 4th World Parkinson Congress (WPC) in Portland, OR. One place our team showed their collaborative spirit was in the poster presentations. Throughout the week, the PDF team presented posters sharing advancements in PD research and care. Many PDF posters, several of which are highlighted below, were authored by teams comprising PD professionals (scientists, doctors, nurses), staff and PDF patient… Read More
What happens when thousands of people touched by Parkinson’s disease get together? That’s exactly what’s happening at the 4th World Parkinson Congress (WPC) in Portland, OR, where a record 4,500 people PD, care partners, researchers, and health professionals from around the globe have gathered to advance treatments and a cure. The answer? A lot happens. The WPC is chock full of educational seminars, scientific sessions, roundtables, poster presentations, music performances, exercise, yoga and more. The hardest part is choosing where to go. Here’s an update on what the PDF team saw and did on day 2 (Wednesday).
Awe-inspiring. It’s a word Dan Novak, Ph.D., Chair of the PDF People with Parkinson’s Advisory Council, used recently when describing the World Parkinson Congress (WPC). Last night in Portland, OR, it proved true. It captured the feeling of walking into a room with 4,000 people (people living with Parkinson’s, care partners, researchers and health professionals) who all share one goal — a world without Parkinson’s. As part of this week’s WPC reports, see our summary of last night’s awe-inspiring Opening Ceremony.