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"Wow," I Have Parkinson’s: Reactions to A Late Quartet and an Early Retirement

Last month, PDF hosted a special screening of the film, A Late Quartet in New York, NY, followed by a conversation with its Director, Yaron Zilberman, PDF Scientific Director Dr. Stanley Fahn and PDF Research Advocate Pam Quinn. If you haven’t yet heard of this film, which is produced by Entertainment One Films, it stars Philip Seymour Hoffman, Catherine Keener, Mark Ivanir and Christopher Walken as a string quartet struggling to stay together in the face of competing egos and … Parkinson’s disease. As you too often tell us, your neighbors and friends may not truly understand the disease.  So… read more Read More

How Will You Get an Early Start to Parkinson’s Awareness Month, April 2013?

Are you planning yet for April 2013? Sounds pretty early to plan for spring, but several months ago, PDF asked the community how we could better support you during April’s Parkinson’s Awareness Month 2013. You all had the same answer … start earlier! So, we are taking your advice. Today, we sent you an e-newsletter, letting you know about ways that you can plan now to make a difference next April. Our tips include ordering free supplies now, planning an event, entering the t-shirt design contest and taking the PDF Champions challenges. Some details on these ideas are below. Do… read more Read More

The Good, the Bad and the Ugly: Science Reporting in Parkinson’s

Will eating berries lessen your risk of Parkinson’s? What about coffee? What’s the real story on coconut oil? Is deep brain stimulation a miracle surgery? All of us, whether or not we live Parkinson’s, are faced each day with a barrage of headlines about what might help or harm our health. After such headlines appear, PDF often receives an influx of inquiries asking: Does this new drug/therapy/compound help Parkinson’s? Is this new drug a cure? When will this new breakthrough be available? The Good News Scientists all over the world are conducting research into Parkinson’s. They are publishing their work… read more Read More

Guest Blog: Stroke Story Has Implications for Parkinson’s Treatment

Therapy is most effective when it addresses an individual’s passion  By Ken AidekmanPaul West is a professor of English and comparative literature and a prodigious writer of both fiction and non-fiction books. His entire life revolves around words. But, in 2003 he suffered a massive stroke that left him with global aphasia, a condition that rendered him unable to understand words or produce them. His wife, Diane Ackerson, also an author and poet, tells the story of West’s bumpy road to recovery in her book One Hundred Names for Love. Upon his emergence from critical care, West was faced with… read more Read More

Understanding the Progression of Parkinson’s

Can you predict the progression of Parkinson’s? … or change its course? Last Tuesday, during PDF’s PD ExpertBriefing, “Understanding the Progression of Parkinson’s,” presenter Dr. Ron Pfeiffer had a few suggestions: Dr. Pfeiffer provided facts about PD progression – about the percentage of people with PD who develop certain symptoms or leave their jobs after a certain number of years – but also emphasized that these are general facts.  Each person’s journey with Parkinson’s is very different. He noted that there are no treatments proven to reverse PD, but he also emphasized there are actions people can take, such as… read more Read More

Protecting the People Who Test New Parkinson’s Treatments

We all want better treatments for Parkinson’s.  Tuesday’s announcement that one of PDF’s Research Centers – Rush University Medical Center, in Chicago, IL – received full accreditation from The Association for the Accreditation of Human Research Protection Programs, Inc. (AAHRPP) is another step in the right direction. Fewer than 200 institutions around the country are fully or partially accredited by AAHRPP. Before any new treatment, for PD or another condition, is approved it must first be tested in people – in clinical research studies – to ensure it is safe and effective.  The AAHRPP accreditation means that Rush is following… read more Read More