Why does mom shuffle and stagger when she walks? What makes grandpa’s hand shake? Will grandma die of Parkinson’s disease (PD)? When there is a diagnosis of Parkinson’s disease in the family, these questions may be on everyone’s minds. If we imagine the experience through the eyes of a child, it is easy to see how such questions can be even more overwhelming.
Who’s talking about sex and Parkinson’s disease? Despite the challenges that some people with Parkinson’s face in regards to sexuality and intimacy (one study showed 87 percent of people with PD experience some sort of issue related to sexuality) the conversation on the topic has been sparse. That is why PDF hosted a webinar on the topic last September with Gila Bronner, M.P.H., M.S.W., C.S.T, which has been viewed by more than 2,000 people. And it’s why why we noticed last week when comedy writer Marc Jaffe published an essay published in the New York Times, Finding Equilibrium in Seesawing Libidos, covering… Read More
Everyone is ready to wear their heart on their sleeve for Parkinson’s after the Kids Only PD Awareness T-Shirt Design Contest! The contest illustrated how everyone, no matter their age, can help to make a difference in the fight against Parkinson’s. Just last week, the public voted for, “Together we can fight Parkinson’s,” a design created by 7-year-old Mabel Johnson, from among six finalists (see all the designs in the slideshow below), to be featured on the official 2015 PD Awareness T-Shirt. Mabel’s design was among nearly 40 endearing designs submitted by children ages five to 15. The designs, most… Read More
On February 2, a group of future osteopathic doctors at the Liberty University College of Osteopathic Medicine (LUCOM) hosted Pancakes for Parkinson’s, a breakfast to raise awareness of PD and funds for PDF. The students, who make up the university’s chapter of the national Student Osteopathic Medical Association, welcomed 100 guests and raised $400. In this Q&A, Pranamya Mahankali, chapter leader, shares why the students got involved as PDF Champions, plus we link to a local news cast featuring the students’ efforts.
When 30,000 neuroscientists gather together to talk about the brain, what can we learn about Parkinson’s disease? Our team found out at the latest meeting of the Society for Neuroscience (SfN) meeting in Washington, DC, which took place in November. At the meeting, PDF’s James Beck, Ph.D., VP for Scientific Affairs, and Beth Vernaleo, Ph.D., Senior Manager, Research Programs, were joined by PDF Research Advocates Todd Hebb and Paul Zimmet, D.D.S., both of whom live with PD. (Drs. Zimmet and Vernaleo are pictured inset).
In this Q&A, Phil Myers shares his thoughts on volunteering as a PDF Research Advocate, and provides tips for individuals thinking of applying for a spot at our upcoming training for new advocates. Phil and his fellow 230 Research Advocates are part of PDF’s Parkinson’s Advocates in Research program. Q. Why did you apply to the PDF Learning Institute? A. A few years ago, my wife had passed away with a parkinsonism and I had recently been diagnosed with Parkinson’s disease. These experiences fueled my desire to be involved in medical research. But I didn’t have a medical background, so… Read More