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PDF Volunteers Reflect on Ali’s Impact on Parkinson’s Cause

The Parkinson’s Disease Foundation (PDF) and members of the Parkinson’s community continue to mourn the loss of Muhammad Ali and celebrate his efforts to raise awareness of the disease. In the days since his passing, many people in the community have shared reflections on his role as the first celebrity to live publicly with Parkinson’s. Below, hear from PDF volunteer leaders — members of our People with Parkinson’s Advisory Council —  as they share their reactions and insights. (Credit: Kevin Mazur/ Muhammad Ali at PDF Gala, June 1, 1995/Getty Images)

Managing Constipation in PD: Visiting Nurse Notes with Dr. Jean MacFadyen

Is constipation the most disabling symptom of Parkinson’s disease (PD)? It may be surprising, but many people with PD report to the Parkinson’s Disease Foundation (PDF) that the most bothersome aspects of their disease aren’t tremor or stiffness, but instead are nonmotor symptoms such as constipation and fatigue. Luckily, researchers are starting to better understand these symptoms and nurses such as Jean S. MacFadyen, Ph.D., R.N., a 2011 Scholar of The Edmond J. Safra Visiting Nurse Faculty Program (EJS-VNF) at PDF are helping people with Parkinson’s to learn about and manage them. We sat down with Dr. MacFadyen to learn about her experience… read more Read More

Sharing His Parkinson’s Story: Q&A with PDF Research Advocate Bob Zimmerman

As a longtime educator, PDF Research Advocate Robert “Bob” Zimmerman, Ed.D., of Sidney, OH, has spent 40 years helping those around him to learn. Although he is now retired, Dr. Zimmerman hasn’t stopped sharing information with others. The only difference is that now, he is helping others to learn about Parkinson’s. In his new book, Living with Parkinson’s, he shares his 27-year journey with the disease in hopes of helping others. The book chronicles the evolution of his disease, how it impacts his family, and the curve balls that life can toss, when striving to stay positive and live fully with Parkinson’s. The proceeds also… read more Read More

Thanking Nurses During National Nurses Week

Who’s on your Parkinson’s team? For many people with Parkinson’s, nurses are critical members throughout their journey with the disease. In fact, nurses are often the first point of contact for many people with Parkinson’s disease upon receiving a diagnosis. In recent years, PDF has been working alongside nursing leaders to raise awareness of the ways in which nurses improve the lives of people with Parkinson’s and to provide those nurses with the resources they need.  As we are in the midst of National Nurses Week (Friday, May 6 through Thursday, May 12), we want to thank a few nurses… read more Read More

PDF Remembers Quilter Ruth Walters

The Parkinson’s Disease Foundation (PDF) mourns the passing of PDF Creativity Artist Ruth Walters, 90, of Santa Fe, NM, who died on January 19. Ms. Walters’ quilt, “Our Life Together,” is featured in the 2016 PDF Creativity and Parkinson’s Calendar for the month of April, Parkinson’s Awareness Month. “My mom was very proud and happy that her quilt was chosen to appear in the PDF Creativity and Parkinson’s Calendar. She was a passionate and talented quilt artist who loved color, using it to create dazzling beauty. Her creativity carried her through Parkinson’s disease, even when she could no longer sew,”… read more Read More

April Awareness x2: Parkinson’s and Occupational Therapy

Most of us know that April is Parkinson’s Awareness Month. But did you know that April is also National Occupational Therapy Month? At PDF, we are excited to see these two awareness months coincide. We have been working alongside occupational therapists (OTs) in recent years to raise awareness of the ways in which OT can improve the lives of people with Parkinson’s. For example, PDF added a webinar and fact sheet to our library of educational materials, both of which discuss benefits of occupational therapy for people with Parkinson’s and practical tips for working with an OT. We also launched… read more Read More