In this Q&A, Phil Myers shares his thoughts on volunteering as a PDF Research Advocate, and provides tips for individuals thinking of applying for a spot at our upcoming training for new advocates. Phil and his fellow 230 Research Advocates are part of PDF’s Parkinson’s Advocates in Research program. Q. Why did you apply to the PDF Learning Institute? A. A few years ago, my wife had passed away with a parkinsonism and I had recently been diagnosed with Parkinson’s disease. These experiences fueled my desire to be involved in medical research. But I didn’t have a medical background, so… Read More
Several weeks ago, in early December 2013, health leaders from the Group of Eight (G8) met in London, pledging to cure or modify the course of dementia by 2025. This bold declaration is one that the Parkinson’s community is monitoring in light of the fact that about a quarter of people with PD are currently living with dementia. What Should You Know? Dementia describes a range of symptoms related to memory decline. While Alzheimer’s disease makes up the majority of cases of dementia, there are several kinds, including Parkinson’s disease-dementia (PD-D).
During National Family Caregivers Month this November, PDF calls special attention to care partners who are helping to find a cure for Parkinson’s. We are lucky that among PDF’s network of Research Advocates, (all part of the Parkinson’s Advocates in Research program) there are many talented care partners who are working on the front lines with researchers. In this interview, we highlight two of these PDF Research Advocates, care partner team Kim and Libbe Erickson of Stillwater, MN. They joined the program just two years after Kim’s diagnosis in 2010. Here are their insights.
On the final day of the 3rd World Parkinson Congress, there were many more scientific and educational sessions. Roving reporter and PDF Research Advocate Ronnie Wanetick of Walnut Creek, CA, provided summaries of a few sessions she attended.
Most scientific meetings include posters by scientists, which summarize their most recent experiments. The 3rd World Parkinson Congress is unique in that it features posters by advocates with Parkinson’s alongside those by scientists. PDF is proud to report that our team had 13 posters at the WPC! This included posters from seven PDF Research Advocates (one doubled up), three PDF staff members, and two PDF-funded researchers. Yesterday we were able to catch up with a few of them. Here’s a summary:
The 3rd World Parkinson Congress includes three days of sessions discussing the latest in Parkinson’s science and care. During day two, PDF reporter and Research Advocate Ronnie Wanetick of Walnut Creek, CA, reported back on two sessions – one covering late stage Parkinson’s and another discussing cognitive symptoms of Parkinson’s.