Recently, we were asked through the PDF Community Choice Research awards to choose our top priority for Parkinson’s research.
We chose caregiver needs. (See our photo at left, or a larger version here.)
As you may know, PDF spends $5 million a year on research to solve, treat and end Parkinson’s disease. Through the Community Choice Research Awards, PDF asks the community to help identify other unmet needs not being addressed by research.
From our experience (Alan was diagnosed in 2014), care partners need more support. Could research help us understand their needs and address them? We think so.
So we made our voice heard and voted. During National Family Caregivers Month, we urge other Parkinson’s care partners to make their voices heard too.
Care partners have an important perspective to share. And since the Community Choice Research Awards survey launched, nearly 300 care partners have shared their priorities.
Will you join them? Voting is open today, November 15, until midnight.
We we want to hear from you.
Alan Zimmerman of Knoxville, TN, is a member of the PDF People with Parkinson’s Advisory Council.
The PDF Community Choice Research Awards are the first grant awards in the Parkinson’s community to set research priorities based on the insights of those living with the disease. To date, PDF has invested $600,000 for research into topics identified by the community through these awards. PDF and its Scientific Advisory Board will review all votes and select two topics for research funding. Up to two people with PD and care partners whose topics are selected will be asked to join us for research roundtables designed to help solve them.