I’m a person living with Parkinson’s disease. Because of investment from the Parkinson’s Disease Foundation, I am also a trained Research Advocate and a member of the team ending PD. But we need your help.
After my diagnosis in 2008, I wasn’t sure how to make a difference. But by training with PDF’s Parkinson’s Advocates in Research (PAIR) program, I realized that patient advocates have a critical role to play. Now I’m working on the front lines with PDF-funded researchers to solve, treat and end PD.
But we need your donation to help our team, including Research Advocates like me, meet our goals. That’s why, this month, your support goes further. All donations made by Thursday, December 31, will be matched by the PDF Board of Directors and friends for up to $500,000!
During my PDF training, my fellow advocates and I learned about research, drug development and how to advocate for our research priorities. PDF emphasized that our input, as patients, can make research better. Three years later, my training has led me to work with PDF-funded researcher Dr. Benzi Kluger in studying ways to improve palliative care for people with PD.
The good news? Working with a global group of scientists, doctors and Research Advocates, we are making progress. But this would have never been possible without PDF investment in training for me as a patient leader.
In fact, PDF has trained 260 Research Advocates:
- We have worked with more than 400 research professionals.
- We have helped to enroll more than 2,000 people in clinical trials.
- We have moved research forward in all stages — advising the FDA on patient needs; collaborating on local and national research projects and advising pharmaceutical companies on clinical studies.
More than ever before, because of PDF, people with PD are playing an active role in PD research. I’m asking you to double your donation to ensure even more patient leaders have the training they need to join the team!
Your support, your membership on this team, ensures we can recruit more patient leaders to the team and come closer to our goal — ending PD.
Research Advocate, PDF Team Fighting Parkinson’s