How do I cope with neurogenic orthostatic hypotension (nOH)? This is a frequently asked question amongst the callers to the Parkinson’s Disease Foundation (PDF) National HelpLine. If you have experienced it, you may already know that this symptom is common in moderate and advanced Parkinson’s disease (PD).
If you have read the cover article in the Fall 2015 issue of our newsletter, News & Review, you already know that PDF has created a strategic plan to strengthen and accelerate our fight to advance the cure, and care, of Parkinson’s disease. As I enter my 20th anniversary year as chief executive officer of the Parkinson’s Disease Foundation, the new plan is both sobering and exciting.
Don’t grandparents have a way of always making us feel special? Whether it is supporting us at school, cheering us from the sidelines or making our favorite home-cooked meal, they often know just the right thing to say or do. When a grandparent is living with Parkinson’s disease, how can we make them feel special? In honor of national Grandparents Day this Sunday, September 13, we invite you to join the Parkinson’s Disease Foundation in doing just that. It can be as simple as sharing a smile, spending a day together, sending an eCard or raising funds for Parkinson’s disease research.
Do you think of yourself or your loved one as a “caregiver” in life with Parkinson’s disease? There are some people who identify with this term, but many others who do not, which is why when Rhona Johnson, a former member of PDF’s People with Parkinson’s Advisory Council (PPAC) coined the term “care partnership,” PDF thought it fit perfectly.