Let’s Talk About Sex … and Parkinson’s

Who’s talking website-living-pd-masthead_smallabout sex and Parkinson’s disease? Despite the challenges that some people with Parkinson’s face in regards to sexuality and intimacy (one study showed 87 percent of people with PD experience some sort of issue related to sexuality) the conversation on the topic has been sparse.

That is why PDF hosted a webinar on the topic last September with Gila Bronner, M.P.H., M.S.W., C.S.T, which has been viewed by more than 2,000 people. And it’s why why we noticed last week when comedy writer Marc Jaffe published an essay published in the New York Times, Finding Equilibrium in Seesawing Libidos, covering this sensitive topic of sexuality and PD.

In his piece, Mr. Jaffe eloquently shares the challenges he and his wife faced after her diagnosis of Parkinson’s, including her experience of hypersexuality as a side effect of PD medications.  We applaud the couple for so bravely sharing their story, which both helps to raise awareness of the issue and to let others know that they are not alone.

Still, issues related to sexuality and intimacy in PD often remain behind closed doors. They are rarely discussed among people with Parkinson’s disease and their doctors … as is true of other non-motor symptoms of the disease. But we can change that.

Plus, there are ways to address these issues. So it is vital to open up the conversation, both publicly and with our doctors, and to keep that conversation going. We thank the Jaffes for moving the conversation along.

What do you think? Please share any thoughts on this topic, or the recent New York Times article, in the comments below. And learn more by viewing PDF’s free webinars or by contacting our HelpLine from Monday through Friday, 9:00 AM to 5:00 PM ET at (800) 457-6676 or info@pdf.org so we can help answer your questions related to sexuality, intimacy and PD.

View the PD ExpertBriefing:  Sexuality and Intimacy in Parkinson’s

View the PD ExpertBriefing: Impulsive and Compulsive Behaviors in PD 

One thought on “Let’s Talk About Sex … and Parkinson’s

  1. Cassidy

    My husband had issues for three years before his diagnosis. I really started to believe that it was me. I having medical problems myself thought that it had worn on him for the 11 years (at that time) since my diagnoses. When he finally was diagnosed I felt better knowing there was something and it wasn’t me. His doctor told us to see a urologist. He won’t do that though. Life moves on and we’ll figure it out.

    Reply

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