“I decided that running … would be the perfect way to honor my Mother because although running is something she can no longer do, I could do it in her place.” In this Q&A, Lisa Goecke, who is running the Hot Chocolate 15k on November 9 in Chicago, IL as a PDF Champion, shares her story.
In this Q&A, Diane Cook shares her experience being involved in the PDF Community Choice Research Award. Last year, PDF launched the award by asking the community, “what is the most pressing question for scientists to solve in PD?” From the hundreds of submissions we received, our advisory board selected two – fatigue and gastrointestinal function – for awards. This fall, we’re hosting conferences to outline solutions for both symptoms. Q. You attended the first ever conference funded by the PDF Community Choice Research Award. What are your overall impressions? A. First of all, it was very exciting to be… Read More
In this Q&A, Anne Newbould, a care partner to her husband with PD, shares her experience being involved in the PDF Community Choice Research Award. Last year, when PDF launched the award by asking, “what is the most pressing question for scientists to solve in PD?” she answered: fatigue. Her research priority was selected from amongst hundreds of submissions. This week, to address the symptom she helped to identify, PDF is bringing together experts and advocates in Chicago, IL. Q. What motivated you to submit your research idea for PDF’s Community Choice Research Award? A. My husband of over 40 years, James, has… Read More
A few weeks ago, PDF staff and some of our volunteer Research Advocates attended a symposium that brings together scientists who are all focused on solving Parkinson’s disease: the 28th Annual Parkinson Study Group (PSG) Symposium in St. Louis, MO. The theme of this year’s symposium was disease modification, finding ways to not only ease symptoms, but also to change the progression of the disease. This starts with basic research to better understand what causes Parkinson’s disease, and ends with clinical trials testing drugs or compounds to ease symptoms or, hopefully, prevent Parkinson’s in the first place.
A year or so after President Obama personally announced his signature initiative to create a public-private partnership to improve our understanding of the infrastructure of the human brain, the White House convened 250 of us to hear a report card and plans on progress to date. I was invited — wearing my two hats as President of the Parkinson’s Disease Foundation and Chair of the American Brain Coalition — to attend the September 30 meeting, along with other leaders of the multi-million dollar effort, including those from the National Institutes of Health (NIH) neurology and mental health institutes, neuroscientists, industry reps, professional… Read More