Each day during our coverage of the 3rd World Parkinson Congress, we ask our WPC reporters, “What’s the most interesting thing you heard or saw today?” Here are three answers from pre-congress days, Monday, September 30 and Tuesday, October 1 (called Day 0).
Claire Berman, New York, NY
I saw a lot of bravery here – people battling PD and the partners who care for and about them. I was touched and impressed.
At Monday’s Public Policy Forum, a pre-session of WPC, an analyst from Europe declared that there were 1.2 million people afflicted from Parkinson’s disease in Europe, while a US Analyst declared that there were 630,000 people affected in the USA. Each used data gathered from public records.
In Europe, there are many countries that require declaration of such conditions from various medical professionals and social services…and even pharmacies, while still protecting privacy. It is quite the opposite in the US, with the rigid privacy laws inhibiting most disclosures. The speaker even spoke of US range being between 500,000 and 1.5 million, while defending his 630,000.
Karen Smith, Evansville, IN
It was a beautiful day in Montreal at the start of the World Parkinson’s Congress. This week, I am looking forward to seeing old friends and meeting new ones. I hope to take in many of the presentations and bring the information back to my PD family at home. On WPC Day 0, the energy of the combined community was immense. Sessions were informative and the people engaged. I just heard Ronnie Todaro, PDF’s VP of National Programs, lead a panel on Patient Engagement – a subject near and dear to my heart. I now have new information to help in my advocacy efforts.
If you’re here at the WPC, don’t forget to stop by the PDF table in the Clinical Research Village!