Yearly Archives: 2012

"Wow," I Have Parkinson’s: Reactions to A Late Quartet and an Early Retirement

Last month, PDF hosted a special screening of the film, A Late Quartet in New York, NY, followed by a conversation with its Director, Yaron Zilberman, PDF Scientific Director Dr. Stanley Fahn and PDF Research Advocate Pam Quinn. If you haven’t yet heard of this film, which is produced by Entertainment One Films, it stars Philip Seymour Hoffman, Catherine Keener, Mark Ivanir and Christopher Walken as a string quartet struggling to stay together in the face of competing egos and … Parkinson’s disease. As you too often tell us, your neighbors and friends may not truly understand the disease.  So… read more Read More

Join the fight on Giving Tuesday!

As we all give thanks at this time of year, we remind ourselves for what, and for whom, we are thankful.  PDF is grateful now and always for our many supporters, volunteers, advocates and PDF Champions who are making a difference in the fight against Parkinson’s.  We could not do our work without these individuals who raise awareness and funds in their communities. PDF’s programs seek to empower the community to be proactive in making a difference in the cause.  One way we do this is by providing loved ones, family and friends with tools to raise awareness in their communities… read more Read More

How Will You Get an Early Start to Parkinson’s Awareness Month, April 2013?

Are you planning yet for April 2013? Sounds pretty early to plan for spring, but several months ago, PDF asked the community how we could better support you during April’s Parkinson’s Awareness Month 2013. You all had the same answer … start earlier! So, we are taking your advice. Today, we sent you an e-newsletter, letting you know about ways that you can plan now to make a difference next April. Our tips include ordering free supplies now, planning an event, entering the t-shirt design contest and taking the PDF Champions challenges. Some details on these ideas are below. Do… read more Read More

A Fond Farewell to an Extraordinary Friend, Paula Wittekind

Paula Wittekind In the loss of Paula Wittekind, who passed away on November 8, the Parkinson’s community bids farewell to a lovely friend, a fine mind, and a courageous and indefatigable presence. To the end, she fought quietly but effectively against her own infirmities and against the indifference of institutions that she felt could always do more to wage serious war against Parkinson’s. But in all of these ventures – whether it was the legendary Parkinson’s Pipeline Group, which she co-founded, the Parkinson’s Action Network, or my own organization, the Parkinson’s Disease Foundation – Paula served as an effective research… read more Read More

Remembering Arlen Specter

When I learned of the death of former Senator Arlen Specter two weeks ago, I thought immediately of two people in the Parkinson’s community who I knew would strike just the right chord to pull me out of a mood of regret for the loss of a true champion of medical research in America. I got it right. One was of these was Jim Cordy  – a veteran of the 1990’s “Washington Wars” to get Parkinson’s disease recognized – and funded — as a national priority.  He was a close colleague of Joan Samuelson (read on), the founder of the… read more Read More

The Good, the Bad and the Ugly: Science Reporting in Parkinson’s

Will eating berries lessen your risk of Parkinson’s? What about coffee? What’s the real story on coconut oil? Is deep brain stimulation a miracle surgery? All of us, whether or not we live Parkinson’s, are faced each day with a barrage of headlines about what might help or harm our health. After such headlines appear, PDF often receives an influx of inquiries asking: Does this new drug/therapy/compound help Parkinson’s? Is this new drug a cure? When will this new breakthrough be available? The Good News Scientists all over the world are conducting research into Parkinson’s. They are publishing their work… read more Read More