From James Beck, Ph.D., Director of Research Programs Yesterday, an industry-sponsored session for clinicians and scientists was held prior to the official start of 2nd World Parkinson Congress. Largely a review of current medical management of PD, the session included one tidbit that I found particularly interesting – a comment made by Mark Stacy, M.D. He said that orthostatic hypotension, that is low blood pressure upon standing, is the most common, unrecognized symptom of PD. Up to 40 percent of people with PD experience orthostatic hypotension. Drugs that are currently approved to treat hypotension, like midodrine, work, but may work… Read More
The Parkinson’s Quilt has now been displayed for the first time. See photos below of the display and of what we call the “Living Quilt” where attendees to the WPC can create new panels on-site.
Rhona Johnson, one of PDF’s WPC reporters and member of our People with Parkinson’s Advisory Council, would like to follow-up on previous posts discussing last night’s WPC Opening Ceremonies. Rhona and others communicated that they were particularly moved at the ceremonies by the words of Bryn Williams, founder of WobblyWilliams.com. Here’s Rhona’s report: “At the Opening Ceremonies last night, Bryn Williams, Founder of WobbyWilliams.com spoke eloquently of how PD impacts people living with the disease, their families, friends and carers. He issued an urgent challenge to them all the work for a cure, saying, ‘Neurologists cannot do it alone. We… Read More
The first day of the 2nd World Parkinson Congress has begun. Scientific sessions are already underway and we hope to have some reports for you later today. Who else is reporting on the WPC? Several other community members, including some of our very own reporters, are blogging all week long as well. We’ll post some of these blogs below and start a new WPC Blogroll at right. Do you know of others? Kate: CRLI graduate Kate has a wonderful story up about how she came to the WPC. Jackie: CRLI graduate Jackie is already blogging about her experience at the… Read More
As we kick off the first full day of sessions of the 2nd World Parkinson Congress, we’d like to share (a bit belatedly so) a lovely Haiku emailed to us yesterday by Renee LeVerrier, as she waited for the opening ceremonies to begin Pre-Congress Haiku Cloudy sky, Glasgow fogCannot dampen spirits orClarity we seek Renee is one of our WPC reporters and a graduate of PDF’s Clinical Research Learning Institute. Later today, Renee is presenting a poster entitled, “Yoga Teacher Training for Students with Parkinson’s Disease.” Learn More: If you’d like to learn more about Renee and our other WPC… Read More
Last night’s opening ceremonies of the 2nd World Parkinson Congress included not only inspirational words, but also action…in the form of the newly-announced Global Parkinson’s Pledge. With just one click, you can make your voice heard and help to make Parkinson’s a priority around the world. The final two lines of the Global Parkinson’s Pledge speak to its purpose: “Furthermore, we celebrate the momentum created by the second World Parkinson Congress and commit ourselves to working together to build a global Parkinson’s movement, designed to elevate Parkinson’s disease as a priority health, social and economic issue around the world.“The Parkinson’s… Read More