How do I cope with neurogenic orthostatic hypotension (nOH)? This is a frequently asked question amongst the callers to the Parkinson’s Disease Foundation (PDF) National HelpLine.
If you have experienced it, you may already know that this symptom is common in moderate and advanced Parkinson’s disease (PD).
If you have read the cover article in the Fall 2015 issue of our newsletter, News & Review, you already know that PDF has created a strategic plan to strengthen and accelerate our fight to advance the cure, and care, of Parkinson’s disease.
As I enter my 20th anniversary year as chief executive officer of the Parkinson’s Disease Foundation, the new plan is both sobering and exciting.
Mackenzie Platt, contestant, 2015 PD Awareness T-Shirt Contest
Don’t grandparents have a way of always making us feel special? Whether it is supporting us at school, cheering us from the sidelines or making our favorite home-cooked meal, they often know just the right thing to say or do. When a grandparent is living with Parkinson’s disease, how can we make them feel special?
In honor of national Grandparents Day this Sunday, September 13, we invite you to join the Parkinson’s Disease Foundation in doing just that. It can be as simple as sharing a smile, spending a day together, sending an eCard or raising funds for Parkinson’s disease research.
Do you think of yourself or your loved one as a “caregiver” in life with Parkinson’s disease?
There are some people who identify with this term, but many others who do not, which is why when Rhona Johnson, a former member of PDF’s People with Parkinson’s Advisory Council (PPAC) coined the term “care partnership,” PDF thought it fit perfectly.
Family Circle, September 2015
Have you picked up the latest issue of Family Circle magazine? If you flip to page 103, you will find a personal story about Parkinson’s disease written by Maria De Leon, M.D., a Research Advocate with the Parkinson’s Disease Foundation and former member of our People with Parkinson’s Advisory Council.
For those of you who do not know Dr. De Leon, she is both a movement disorder specialist (a neurologist with specialized training in PD) and a person living with PD.
Dr. De Leon’s story in Family Circle traces her journey with PD, from the confusion that arose over her diagnosis — in part because her early symptoms were not “typical” — to her current work as an advocate with PDF. We sat down to ask her about the story, what has changed in PD in the past 10 years, and what she hopes to achieve by sharing her story in this way.
A.C. Woolnough doesn’t let Parkinson’s disease get him down. He’s been actively involved in the fight against PD since his diagnosis in 2014, in part by volunteering with the Parkinson’s Disease Foundation (PDF).
He is not only a member of the PDF People with Parkinson’s Advisory Council, and one of our Research Advocates, he is also a member of our Creativity and PD Project.
Now he’s adding another volunteer role to his long PD volunteer resume — fundraiser. He is putting his passion for golf to work as a PDF Champion next Saturday, September 5, when he will host Shake, Rattle & Roll in Sandpoint, ID, a golf tournament to benefit PDF.
What drives A.C. to be so active in the community? Hear from him in our interview below.