Who’s on your Parkinson’s team? For many people with Parkinson’s, nurses are critical members throughout their journey with the disease. In fact, nurses are often the first point of contact for many people with Parkinson’s disease upon receiving a diagnosis.
In recent years, PDF has been working alongside nursing leaders to raise awareness of the ways in which nurses improve the lives of people with Parkinson’s and to provide those nurses with the resources they need. As we are in the midst of National Nurses Week (Friday, May 6 through Thursday, May 12), we want to thank a few nurses for their efforts and explore the PDF resources available for nurses working on the frontlines with people with Parkinson’s.
“Our Life Together,” by PDF Artist Ruth Walters
The Parkinson’s Disease Foundation (PDF) mourns the passing of PDF Creativity Artist Ruth Walters, 90, of Santa Fe, NM, who died on January 19. Ms. Walters’ quilt, “Our Life Together,” is featured in the 2016 PDF Creativity and Parkinson’s Calendar for the month of April, Parkinson’s Awareness Month.
“My mom was very proud and happy that her quilt was chosen to appear in the PDF Creativity and Parkinson’s Calendar. She was a passionate and talented quilt artist who loved color, using it to create dazzling beauty. Her creativity carried her through Parkinson’s disease, even when she could no longer sew,” says her daughter Lynn.
Do you or a loved one experience dyskinesias as part of Parkinson’s disease (PD)? The Parkinson’s Disease Foundation (PDF) has exciting news that may affect those of you who experience levodopa-induced dyskinesias (LIDs), the twisting and writhing movements that occur when people take levodopa.
A few months ago, the Food and Drug Administration (FDA) granted orphan drug status to an experimental PD medication called eltoprazine, which is designed to ease LIDs. This status acknowledges that the drug fills an important unmet need (if approved, it would be the first drug available to treat LIDs) and may allow the drug to become available more quickly.
Not only that, the drug was identified for treatment of LIDs in Parkinson’s because of basic science funded by PDF 10 years ago. In this installment of Back to Basics (see installment one here), we give you the story on this drug — how basic science from 2006 might help the PD community in 2016.
Occupational therapist Linda Tickle-Degnen, Ph.D., OTR/L, FAOTA, pictured here at the PDF booth at the AOTA meeting.
Most of us know that April is Parkinson’s Awareness Month. But did you know that April is also National Occupational Therapy Month?
At PDF, we are excited to see these two awareness months coincide. We have been working alongside occupational therapists (OTs) in recent years to raise awareness of the ways in which OT can improve the lives of people with Parkinson’s.
For example, PDF added a webinar and fact sheet to our library of educational materials, both of which discuss benefits of occupational therapy for people with Parkinson’s and practical tips for working with an OT. We also launched a new online course, Occupational Therapy: Across the Parkinson’s Disease Continuum, designed to help occupational therapists keep up with the latest in Parkinson’s.
How can you help PDF end Parkinson’s disease? Join our team during April, Parkinson’s Awareness Month!
Here are five easy ways you can join the team, inspired by the efforts of PDF Champions — our grassroots fundraisers who are raising awareness and funds for Parkinson’s in communities across the US.
Will you be joining the PDF team at the 22nd Parkinson’s Unity Walk on Saturday, April 23 in Central Park in New York City?
Each year, thousands of individuals in the Parkinson’s community unite for this one-mile walk to raise awareness and funds. All proceeds support research for major US Parkinson’s foundations, including PDF. Not only that, the walk provides a fun and festive day for the Parkinson’s community.